I know many of you are wondering how Luke is doing without his trach. He is doing okay. We found out last Friday that he had an infection in the secretions that they took out of his lungs, so they put him on a very strong antibiotic. It seems to be doing the job although tonight Luke is not feeling very well and is having a hard time keeping his oxygen level up and his heart rate is going very high. Please be praying that it is nothing serious and that by morning he will be feeling well again.
I’m sorry for not posting sooner but this week has been crazy. As I told you we thought we had lost our nurses after the trach came out, only to get a call from our insurance agency saying that we could have 24 hours a week to help us transition to no nurses. We are therefore going to take nurses on a few short days a week to help out especially in the morning when it is hard for me to get my act together on some days.
I thought I would share a bit of my heart with you all out there in blog land. Getting Luke’s trach out is such a big deal, but as I was once again reminded today Luke is still very much of a special needs child. It continues to be so hard for me to see him this way, at times it just breaks my heart. I was thinking once again how blessed I am to be spending Mother’s Day with all my children, but at the same time desiring to have my precious Lukie whole again. There are times when I feel so selfish for wishing for more when Luke is doing so well and is recovering so very slowly, but I guess that anyone in my position would desire the same thing.
Please be praying with us as our oldest son Daniel leaves on Monday with his school group to go on a missions trip to Scotland. They will be ministering to the children and youth there, going into the schools and neighborhoods with the good news. He will be gone for two weeks, we will miss him dearly, but our hearts are overjoyed that he is able to be used by God. Also please continue to pray for my schedule as I continue to adjust to our new nursing schedule, that I will be a good steward of the time that the Lord gives to me. As mentioned above please pray for Luke that he will stay healthy and that the infection in his lungs will completely go away and that he will never have to be put on oxygen again. Luke also needs to gain some weight he has only gained two pounds since the accident, we are currently adding some calories to his diet so that he will start to gain some weight, please pray that he will once again tolerate more food into his G-tube during the day and swallow more when we feed him by mouth.
We would like to wish all you Mother’s out there a Happy Mother’s Day and pray that you will be blessed by God and your families today.
Love in Christ,
Luke’s Mommy Sue
10 comments:
Hi Sue and family-
First I want to say Happy Mothers Day to you Sue. My prayers continue to flow to you and your family as they have from the start. You sound somewhat discouraged but I know that your days are long and stressful. Please be assured that God is always by your sides and that Luke is in his hands. I will pray for Daniel's journey that he will return with a fuller heart. Take care of yourself. Bless the rest of your family as well. Always Mary
Where in Scotland will Daniel be?
Happy Mothers Day Sue !!
You are such a strong lady !! Our prays are with you and your family.
Good luck to Daniel on his upcoming trip, you must be SOO proud of him. I know you are as with all your children you have a lot to be proud of.
God bless and take some time for you today to relax it is after all a day for mothers today and you are on the top of the list for Mom's everywhere!
Ellen (themillmans.com)
Daniel is going to be in the Glasgow area of Scotland.
It has been a long night and we are going to take Luke to the Dr shortly. He continues to have a fever and the tylenol is just keeping it in check. We are concerned that he has some kind of infection that the antibiotic is not strong enough to kill. Please pray, that we will be able to get the fever under control and that Luke will get well. Gordy
Reading the updates and Gordy's comments here~ praying for all of you! For Luke and the fever~ please know you are in our hearts and minds and we continue to pray..
You are such a testimony of a wonderful mother... I see the joy of motherhood in your life~ and I feel honored to know you. As I have said before you have made an impact on my life~
keep us posted when you can~
our love
your Georgia Friends,
Billy, Teena, Michael, Mandi, Dakota, Alyssa, Wyatt & Wesley
Hi Sue.
Shirly Blanford reminded me today to keep on remembering our dreams we have had regarding Luke. Many of us have had incredible dreams about him getting better.
Please don't get discuraged. Life here is short, it's a wonderful reward when we make it to Heaven.
Love in Christ, Cindy Moreno.
Thank you for the prayers. We called Luke's Dr and expected he was going to tell us to go to the ER, the last place we wanted to go today. Sue told the Dr all that was going on, and to our surprise he said just keep an eye on him for a few days. His fever has dropped and we have not had to give him any more tylenol, PTL. Luke is having difficulty keeping his food down, continue to pray that he will get well. I will blog again when there is more. Thank You, Gordy
Ohhhhh Sue, I sure understand that mom's desire of wanting things "back to normal" and all the "what ifs" and yet I know God takes us through these journeys to refine us and bring us forth, shinning as gold. My heart goes out to you, as you look at your little Luke. Hug him, love him - he is such a special gift of life that will teach your family many things in the years to come of God's faithfulness, provisions, grace, mercy, and most of all His healing in the way He desires. It's hard. I know, and I send you hugs along with tears.
Loni
Hi Sue,
My daughter was a near drowning may 16, 2004. I read your posting for yesterday and my heart went out to you. There is no other experience in the world like this. It is so hard because you are so joyful and thankful for the miracle of life (especially when reading of all the drownings that ended lives), but you also are suffering a loss of the child who was before all in an instant completely changed. God is the ultimate source of strength. I am praying for you, Luke, and your family.
In Christian Love,
Annie
(Isabelle's mom)
So thankful that Luke didn't have to go to the ER~ also PTL that the fever is coming down.
We are praying for Daniel also~
continuing to pray ... you are in our hearts/minds~
your Georgia friends,
Billy, Teena, Michael, Mandi, Dakota, Alyssa, Wyatt & Wesley
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