Monday, October 17, 2005

Luke heads back to Mary Bridge Hospital for surgery tomorrow

Let's see, where do I start today's blog??? Well I would like to say thank you for your prayers for all of us while Natalie, Lily and I went to CA, we had a great time and the rest of the family did wonderful at home. Luke is doing good, he had been fighting some kind of virus or something, each day no fever, but at night he would have a fever and high heart rate, which tells us he was in pain. I think that we are finally past that. Many people have asked how my back is feeling? I have to tell you that I believe God touched my back because I literally have not a bit of pain in it, I can't tell you exactly how that happened except to say it was a touch from God. Thank you once again for your prayers they really do make a difference.

Well we are getting ready for another hospital stay. Luke goes in tomorrow at 8:00 a.m. for his surgery at 10:00. He will be getting a Nissen Fundoplication, which will stop his reflux, or indigestion problems he's been having for a long time. He will also be getting his trach whole closed, which is still open a tiny bit, it will be so nice for him not to have to deal with this anymore. I am not looking forward to our stay at Mary Bridge, though it is a great hospital, it will really be tough on Luke and our whole family this week, as once again I will be living with Luke at the hospital.

I thank the Lord all the time that my girls are such wonderful help they will be taking care of the little boys, keeping the home picked up, while continuing to do their school work and other commitments they have each day. I have a few friends that will be helping watch Lily during the day then at night she will spend the night at the hospital with Luke, Yoli and myself. To say that I'm dreading this week is an extreme understatement, I hate the feeling of being torn in two not wanting to leave Luke's side but also wanting to be a home with the rest of the family. Please be praying specifically for Dr. Malo as she does the surgery, that God will use her hands and she will do an awesome job, it will be a 2 to 3 hour surgery. Also be praying that Luke will feel the presence of God the whole time he is in the Hospital and that this surgery will make a wonderful difference in his life, for a speedy recover and that he won't be in extreme pain as he heals.

Just a little bit of other news around the Searles Home. Amy turned 18 last week and had a wonderful Birthday. I find it so hard to believe that I have two adult children, I'm so thankful all my children love the Lord and feel so blessed by the Lord that they are so helpful and fun to be around. Daniel continues to work hard each week laying tile, making the money he needs to continue buying the items he will need for his recording studio. We are getting into a great schedule each day with schooling in the morning, the boys are learning that before we start school we need to have breakfast done, be dressed and pick up our rooms. I personally find it so much easier to do school when we are organized. We then have the YMCA PE on Tuesday and Thurday afternoon, with choir on Thursdays for Isaiah and Ezekiel, while Amy takes Luke swimming in the pool, he so enjoys swimming and is so relaxed when they get done each time.
Lily is crawling all over the place and takes a step every once in awhile, she continues to be a happy sweet baby. Gordy has been real busy at work and this week will continue to be busy as his partner is on vacation.

Someone recently posted a comment about us being selfish in the fact that we only talk about our family and ask prayer for our needs. I really felt bad when I read this comment, though this blog began because we needed very specific prayers for Luke and our family during a time of crisis right after the accident, I guess that we just have continued to post about Luke and our families needs. I know that this past year has been a year of survival mode for myself and at times I've been selfish to only think of our needs, I've never been this way before but I guess when you go through a time of great trial it's hard to look outward at others needs. Forgive us if we've seemed selfish in our requests and know that though we don't always mention others needs in our blogs, we do a lot of praying for others. I hope that this makes sense and that someday I will not have to ask others to pray for Luke because we will all be praying for other peoples miracles to happen.

We will try hard to keep you up to date this week on how things are going at the hospital. We would love to have visitors once Luke is feeling up to them at the Hospital, we will let you know when that will be. Please know that as mentioned before we love to hear your comments and if you ever post a prayer need we will faithfully lift up your need to the Lord who loves us all and wants to answer our prayers as Jeremiah 29:12 says, Then you will call upon Me and go and pray to Me, and I will listen to you. What a great promise from our Lord!

Love in Christ,
Luke's Mommy Sue

Tuesday, October 04, 2005

Some new photos

Here are a few photos from our vacation and painting the house. Enjoy!

What a great looking group of kids!

Daniel takes a break from skimboarding to watch the sunset.

Hey Dad, can I borrow your sunglasses?

Are you as cold as you look zeke?

Do you like my sand beard?

I love flying kites, it is so relaxing.

Do you want a lesson on how to fly a kite?

Wow! You're kidding.

Gordy is saying a quick prayer, "Dear God, please help us be done soon, Amen!"

Friday, September 30, 2005

Look what the Lord has done for Luke this past year

It's hard to believe just a year ago from yesterday, we had finally come home from our month long stay at the hospital. WOW, what amazing changes we've seen! Luke came home on 5 different meds given 4 times daily to where now he is down to just one more prescription medicine. We came home feeling overwhelmed at the equipment that he had to have each day and night and we are now down to his food pump and we also use an oximeter to help us keep a better eye on him during the night. We came home to two huge oxygen tanks, which we finally had taken away after not ever using them, to where now we have some little portable tanks that we have not had to use in a long time.

We came home with a little boy who always stared off into the distance and was constantly facing to the right with his body shaped like a backward C, to where now he is looking around the room, will look right at you when he feels like it, will watch the TV sometimes, he is now standing up between our legs and holding up his head with out much help from us, he also sits up and holds his head up on his own for the most part. I remember thinking how are we going to get enough suction catheters for suctioning his trach at least 20 to 25 times a day, to where now he doesn't even have a trach and we only have to suction him in the morning and this morning it was only once all day long. Do you remember all the times we asked you pray for him to sleep through out the night? Well now he does awesome sleeping, some days we need to wake him up in the morning, to get ready to go some place.

I can remember so clearly as if it was just yesterday looking at Luke and crying out to the Lord to heal him, just wishing for any kind of recognition, now it is so clear that he knows familiar people and he definitely acts uncomfortable around new people and situations. It was so exciting to hear his one Dr. say that the cortex part of his brain is coming back, after being told that his brain is dead and there is no hope of his getting any better. The only way we would know if Luke was uncomfortable was by watching his right eye and if it got red around it we knew he was in pain. Now we know for sure when Luke is in pain by his facial expressions and by the noises he makes, he was literally crying out today when he was being massaged letting us know he was not liking it and the second we stopped he stopped. WOW, that is just amazing.

I will be the first person to admit that this has been the most challenging, difficult and at times horrible year of my life, but it has also been a year of seeing God come down and do some mighty things in our family. Just the other night we where having a time of sharing testimonies at our church and Amy shared with the people how God had touched her and took away the horrible nightmares that she had on a daily basis of seeing her little brother floating dead in the water of our pool. She shared how God throughout this past year has touched her and healed the hurt that she has experienced from Luke's drowning, to where she used to wonder if God was going to really heal Luke to where now she has an assurance in her heart that God is going to heal Luke completely and totally.

We are so happy that you are still following Luke's constant steps toward his complete healing. We can never even begin to let you know how thankful we are for your continued prayers and support, I know that we mention this often but you can not even begin to imagine how much we truly appreciate all of you! We pray that God will bless you today with feeling His love in your hearts and fill you up with His joy, the joy that only He can give. Please keep Natalie, Lily and myself in your prayers as we fly down to CA to bring home my good friend Yoli and her kids. Also keep Luke, Amy, Isaiah and Ezekiel in your prayers as they are going to spend Saturday night at my sister, Jill's home, it will be the first time Luke will spend the night at someones home without Gordy or I there, Amy bless her heart will help teach Jill how to feed Luke and what to do in some of those tricky times when Luke's needs just a little bit of extra help. And don't forget Gordy and Daniel they will be staying home the entire time, Gordy will be alone the rest of nights with Luke so please pray that Luke will continue to sleep good as he has been doing lately. Thank you in advance for your prayers.

Love in Christ,
Luke's Mommy Sue

P.S. I finally scheduled Luke for his Nissen Fundoplication surgery October 18th, but I continue to ask you to join us in our prayers that Luke won't need this sugery. This surgery would help him with the horrible indigestion and gastric reflux that he has on a daily basis.

Wednesday, September 21, 2005

A Great Report on Luke's Toe's, Ankles and Knees

We had some great news today as I took Luke in for a evaluation on his leg splints. He had them made at the beginning of the year and at that time we were told they were not sure how long they would last. Well though Luke has not gained much weight he has gotten taller this past year, needless to say he has outgrown his leg splints.

It was so exciting to hear today that Luke's toes are looking awesome, they used to be bend over each other and now they are straight out. He kept looking at his ankles and made the comment that they are bending at least a 95 percent angle, which is awesome a 100 % bend is perfect. He felt his knee joints and said that they are feeling okay and that he was very happy to see the bend that we are getting in his legs, his legs used to be ramrod straight and now they are hanging down. He mentioned that we will want to talk to our PT before deciding what we should do next as far as helping his legs progress even better.

Do you remember that over the past year there have been many times that I've specifically asked for prayer that God would help Luke's legs to bend and his arm to straighten out. Well God is answering our prayers because his arms are straightening out and his legs while not bending perfectly yet are beginning to bend. As he talked about the future and the different options we might have I once again told him that I believe that Luke is going to be completely healed and will be walking and running sometime in the near future. It's so funny to see how people will respond to this they usually don't know what to say, a lot of them probably think that poor Mom it's too bad she just can't accept her child's handicapped. But they don't know the God that I serve, I know that nothing is too difficult for Him and saving and healing people is what He does best.

This week has been a very challenging one for me. I've had some very painful days to deal with. My back began to hurt last week and was getting worse every day until I was literally crying out in pain at various times through out the day. My Chriropractor wanted me to go in for a MRI, so that is what I did tonight, I'm glad that is over it was very uncomfortable to say the least. I will learn the results on Friday. Please be praying that God will completely heal my back, I was feeling so much better today so I'm believing that God has already began the healing process. It is so hard for me to take it easy when there are 101 things that I could be doing each day and it literally just about kills me to not be able to carry Luke around and help with his care. I've been crying out to the Lord for a touch and for wisdom to make the time I need to take care of myself. I know when I was walking faithfully up until Luke's accident last year that my back was feeling so wonderful, I'm hoping that I can begin to walk regularly again, I just have to take the time of which I'm always running short on. I've had a heavy heart lately, sometimes I get so impatient with God's timing in healing Luke and it just kills me to see him just laying around when he could be running and playing with his brothers. The part of my scripture verse from Hab. 2:2 & 3,that I've been clinging to lately is the part that says, "if it seems slow, don't despair." I realize that it must sound selfish to those that have lost a loved one or gone through the tragedy of losing your home to Hurricane Katrina, that here I am with Luke alive and getting better all the time, saying what are you whining about Sue??

Would you please continue to pray specifically for Luke's lungs to get better, he has a very strong cough and sneeze but he struggles daily to keep his lungs clear. We rarely have to suction him anymore, except in the morning, which is absolutely great. I was just telling a friend tonight how great he has been sleeping, I remember this time last year he never slept through the night, another answer to prayer. Would you also pray for Luke to smile and laugh again, somedays I feel I would do anything to see his precious beautiful smile again. Both Gordy and I are so encouraged to hear from all that are still praying and following along with Luke's updates and prayer requests. I look forward to the day that you will look to the blog and see in huge print that Luke has been completely and totally healed, it's coming don't doubt it for a moment.

Love in Christ,
Luke's Mommy Sue

Tuesday, September 13, 2005

New's about our wonderful trip and Luke's great evaluation

Sometimes it's hard for me to know where to begin sharing all the news I have to share after such a long time of not writing. I am thankful that Gordy was able to blog a few times during our vacation.

Thank you for your prayers about our vacation, I don't know how many times I said to Gordy and the kids that this was the best vacation we've ever had. The one and only thing I would of changed is that we would of been chasing Luke around the playground & beach instead of pushing him in his stroller. Praise the Lord, Luke stayed healthy the entire time. He seemed to enjoy all the stimulation that we gave him, taking him to the beach daily to play in the sand, fly kites, walk down the beach, sit and read and relax. I can not even begin to describe how wonderful it was not to have one appointment to go to for two whole weeks. We stayed in a campground right across from the Pacific Ocean and we could walk daily to the beach, it was great.

I knew people were praying for us as we hit the anniversary date of the accident. To be honest Monday the day before the 30th I woke up extremly depressed and crying, thinking back to a year ago, going through the day in my mind, thinking this is the last day I can say at this time last year our life was normal. That morning I just didn't know how I was going to make it through the day, but then I knew someone was praying, because I can't even begin to describe how I felt as the heaviness began to lift and after that I was okay that day and the next. I did shed a few tears on the way home thinking back to the year previous coming home from our long trip just before the accident, remembering how good Luke was in his car seat for such a long trip and then chasing him around the resturant on our way home.

The day after we came home we went to our local state fair, it is a huge fair full of animals, shopping, great food and lots of fun. We took Luke for the first couple hours with us and he seemed to really enjoy himself. On Saturday we were going to spend the day emptying out the trailier and getting it ready for storing away for winter. While Gordy and Daniel worked on that I ended up taking Natalie into the Dr. we thought maybe she had strep throat, but after a culture it came back negative, the Dr. thought maybe it was mono, but we really prayed and she began to feel a little better the next day and continues to feel better each day since. Though please be praying for Luke he seemed to come down with something yesterday, Lily also had a bit of a fever for a few days, so I'm praying that is what Luke has and by tomorrow he will be all better.

On Sunday after sharing a wonderful dinner with Gordy's sister's family in Seattle we headed up north to Anacortes to spend the night. The next morning Luke had his first follow up evaluation with the neurodevelopmentalist. She seemed to be pleased with the progress that Luke has made. He is getting his bobinski reflex back, that is when you tickle the bottom of a foot it should curl the toes, his toes are moving ever so slightly. She was also impressed to see his knees bending more, since at the last one we didn't have any bend at all, she gave us some more exercises to do with him to unlock them even more. She was also happy to see how well he is holding up his head and when we layed him down on his stomach he picked up his head and moved his body to look up at her wondering what she was going to do next. We came home encouraged by his progress with some new exercises to do with him to continue with the program. On the way home we stopped by his PT appt. and Gordy was able to see Luke push the switch button and drive the little car all over the building, I was excited to see him do it with his left hand. We don't see as much movement on his left side, therefore we were told to work with his left side 75% more than his right side when doing his exercises.

This week I'm trying to get a few projects accomplished before we begin school, the YMCA and piano lessons next week. I hope to get the deck painted, it was partially done during our house painting and needs to be finished along wth a few other Fall cleaning chores that really need to be done.

I am planning to schedule Luke's Fundoplication surgery the second week in October after Natalie, Lily and I get home from a trip down to CA to drive back with our good friends Yoli and her son Spencer and daughter Bonnie, they went down there in the middle of August with her husband, Juan, but he was sent to Egypt with his unit in the Army for 8 weeks, so I going to help with the driving home. I'm looking forward to going down there for a few days. Yoli was the faithful friend that has been in the Hospital every night that Luke has been there, so I wanted to wait until she got home to schedule the surgery, but I pray daily that we won't need it and by that time Luke will be healed of his reflux problem.

I will plan to post some pictures soon of our vacation and our home, as was requested by someone a while ago. I know many of you have never blogged or commented, you tell me all the time you read the blog but never comment, a while ago someone mentioned that they thought it would be encouraging for both Gordy and I to see all the people that are still out there praying for Luke's complete healing. I remember shortly after the accident talking to Jodie, who is Josiah's mom, Josiah had a near drowning accident 4 years ago, anyway she told me that people will eventually give up on the miracle of seeing Luke healed after a time of praying. My prayers and hopeful desires is that no one will give up, God is moving and hearing your faithful prayers and He is going to heal Luke in His timing, I'm just praying that it will be soon. It would be so wonderful to see who all is still out there after a year of faithful following along with Luke's progess. You will never even begin to know how much we appreciate all of you, THANK YOU from the bottom of my heart, you are all the reason that I can still go one with a song in my heart.

Love in Christ,
Luke's Mommy Sue

Sunday, September 04, 2005

Yet another miracle

Early this morning around 2:45am we were awoken by two loud explosions that sounded like gun shots and then moments later the sounds of people shouting "Fire". We all quickly exited the trailer to discover a tent less then 100 feet away fully engulfed in flames. Without my contacts in I thought the trees surrounding the tent were on fire and it is an absolute miracle that they weren't. One more time God was watching over our family as he kept the fire in check and prevented it from spreading to our camp site. Quickly a group of people came to the rescue with fire extinguishers, buckets and finally a few extra hoses that we connected to our hose to get water on the fire. The tent and its contents were reduce to smoldering rubble. The woman and daughter that were staying in at the tent site were sleeping in their van and had left a candle burning in the tent. We are grateful to God that nobody was injured and that everything that was damaged can be replaced.

It was encouraging to see others come to the aid of the woman. A family gave them a tent and some groceries. Others bought them new supplies so they could continue on there plan of a two week camping trip. Praise God for His faithfulneess.

We are having a wonderful time here in Newport and have decided to just stay here until returning home on Thursday so we can go "Do The Puyallup".

I must admit I am awe struck by the few images and stories I have seen regarding the aftermath of Katrina. My heart aches for those that have lost loved ones and are enduring great hardship. I have thought about Shane and Julie's family in Mississippi several times the last few days as the realization of Katrina's power unfolds. Father, I ask that you show great favor to these family members and allow them to return to their homes in Mississippi soon. I pray that every brick and every board would be completely in place and there would be no damage to their homes as a testimony of your goodness and grace. In the name of Jesus.

I pray that each of you has an awesome time relaxing with your family this Labor Day.

Tuesday, August 30, 2005

One Year and we still believe in miracles!

It has been one year today since Luke's accident. A year ago this night, I was grateful to God for the first miracle of raising Luke from the dead, as Luke had been dead 30 minutes before being revived in the ER. While grateful, we were still seeking God for a second miracle of complete restoration of Luke's brain and body.

I know that one day God will completely heal Luke, it wont be the PT or HBOT or other things, it will be God and God alone that will get and deserve the credit. I know this beyond a shadow of a doubt, because God has spoken it to me several times and several ways. So, it is not a matter of if God will heal Luke, it is a matter of when, and I do not know when that will be.

Today we saw a couple of mini miracles, but miracles none the less. The first one occured shortly after Daniel, Amy and I left to go golfing. Sue was taking a shower and the boys were at the playground playing. At the playground Isaiah got hit on the head by a piece of wood. Natalie ran to the bathroom and shout to Sue that Isaiah had blood gushing from the back of his head. Sue quickly jumped out of the shower and ran to Isaiah and found him with lots of blood dripping down the back of his head and neck and soaking into the collar of his shirt. Sue and Natalie laid hands on Isaiah and asked God to stop the bleeding and heal Isaiah. God heard their prayer and the bleeding stopped and there is not even a bump where he was hit with the board. Praise God he still hears and answers prayer.

We are camping along the Oregon coast just outside of Newport. When Sue made the reservation, she made it from Sunday to Thursday the 1st of Sept. She had called last week asking if there was any chance of extending the reservation through labor day weekend. The person on the phone said there was a waiting list and it probably wouldnt do any good but they would add us to the list. On Monday I spoke to the ranger that is in charge of the waiting list and he said that we were number 7. I asked him what the chances were and he said "I wouldn't hold my breath, it is very unlikely" When I told Sue she said, well we need to pray. I said, it will be a miracle, if we get to stay beyond Friday noon. She said, I believe in miracles, do you. I must admit, at times, it is easy to loose heart and not trust that it will all work out. As you know, Luke's equipment requires power to run, and I wondered, what we were going to do. So, I went to the store an inverter to power Luke's machines from battery. Oh ye of little faith. Today around lunch time a ranger stopped by and handed Natalie a new ticket with the date 9/5 on it. I said to Natalie, what is that. She said, it is our new ticket, we can stay longer. I said, isn't 9/5 Labor Day? Sue said, yes it is and I told you that it would work out. Well, it is an absolute miracle, go ahead, I dare you to try and get a camping spot in just about any campground in the USA this weekend, it is not an easy task, however it is not too difficult for God. Well this evening, I returned the inverter, as we won't be needing it after all.

Finally, Sue and I want to share a verse with you.
Phil 1:3 "I thank my God upon every remembrance of you,"
This past year has been extremely difficult and we greatly appreciate each and everyone of you that have faithfully prayed for our family this past year. My prayer is that God will bless you and encourage you in the faith. Many have said to us that our faith inspires them, and I want to say that your prayers inspire us. Luke's healing is just a matter of time and it is not just ours but it belongs to all of you and when that day arrives, we can all rejoice in God's goodness together.

We Love you all so much,

Gordy, Sue, Daniel, Amy, Natalie, Isaiah, Ezekiel, Luke and Lily

Wednesday, August 24, 2005

Just had to share with you all about Luke's great day!

I know many of you might be surprised to see such a quick update after just getting one yesterday, but I had to share some good news. Luke had a great day today. First we went to a PT/OT appt this morning and he was fitted for a new chair to sit in at home and also had his stroller fixed so that it could be more comfortable for him. While we were there we went into a room filled with switch toys and many amazing electronic devices. They hooked up a switch button to a tape recorder and put on a children's tape and Luke made it go and then made it stop and then continued to make the music go as he was asked to do so. He also made it go with touching his head to a special switch that the music came directly out of. It was so exciting for me to hear both his PT and OT say that he is definitely following directions on command.

We then left there and went directly to an eye specialist. I know I mentioned that we went there last month and Luke fell asleep almost immediately so that we could not really get a good assesment done on his eyes. Today he stayed awake and I was so excited as he looked straight at the Dr. as he asked him to and he also was doing exactly what his eyes were supposed to be doing. The Dr. shone a light right into his eyes and watched as his pupils did exactly what they should be doing. Then he layed him on the floor and hung a ball to the side and just above his head, the Dr. then said that he looked at the ball and reached for it, it was called a special name though for the life of me I can't remember, but he said that it was how a newborn reaches for things when he is beginning to realize that he can make his hand reach for something that his eyes sees. I had also told the the Dr. that I've been seeing a lot more blinking lately and he told me that is excellent it means that he is actually adjusting his vision to things around him and one last thing that I've noticed lately is that I sometimes see just below his eye quiver a bit and the Dr. said that that means he is trying hard to adjust his eyes to see clearly. PTL, our God is moving just as I knew He would, healing Luke from the inside out. The Dr. also said that the things that he is seeing means the cortex part of the brain is beginning to function once again.

Then tonight Natalie and I took him out the HBOT center for a dive and he was trying to lift up his head and body to watch PSALTY the singing song book video. I told him that he could sit up if he wanted to but he's just not ready for that yet. He seems to continue to be so aware of things around him it is so wonderful to see him take an interest in what is going on. One last thing to share is that he is doing so much better at coughing and getting the junk out of his lungs, but he stills needs prayer that he won't have to do that anymore because his lungs will be completely cleared up. I'm so happy that he continues to stay healthy and we plan to leave this Friday Lord willing for our camping trip.

Love in Christ,
Luke's Mommy Sue

Monday, August 22, 2005

Our home is painted green and it looks great!

Once again I begin this post by saying that we've been extremely busy over the last few weeks. I am so happy to tell you that our house is painted and it looks awesome. We hired a few of Daniel's friends from GTC to help out, Josh & Shane blessed us by doing a great job and we blessed them by helping them get some of there money for going back to GTC for a second year. I'm once again blessed with the realization that I have what I feel are the greatest kids alive. Daniel and Natalie helped paint 4 straight days and Amy kept the house going along with cooking wonderful breakfasts, preparing lunches and making delicious dinners, no one went hungry. Gordy helped 3 of the days painting and I just helped to keep things going. I was able to go a Christian Homeschool Conference in Oregon on Friday and Saturday, so I came home to a job well done. I was telling someone the other day you know you've raised your children right when they can complete a job and keep the house going and everything looks great when you come home.

I know some of you are saying enough, what about Luke? Luke is doing very good. He has stayed healthy these last few weeks, though he continues to struggle at time with his breathing and secretions. His legs are looking better to me all the time and he is getting more bend in his knees. He stays busy with HBOT treatments, PT appts. and Dr. appts. We had his gastric emptying study done and found out at the surgeon appt. last week that he is having reflux and it looks like his stomach is emptying just fine, which was what we expected from what we see of him every day. She, the surgeon would like to do a Nissen Fundoplication on him, I know some of you have asked what that is. It is a surgery where they take the end of the esophagus and basically wrap part of it around his stomach so that the person having it done can not burp up gastric juices or throw up anymore. That is a very simple answer to a complex question, if you would like to more know about it go out to the internet and type it in and it will show pictures and tell you more than you ever wanted to know.

I recently have been feeling that Luke is very near his complete healing. If you have been reading this blog for long you know that we feel that Luke will one day be completely healed, he will walk, talk, run, play and do everything else a child of his age can do. We have had him prayed for by many people over the year and this past week we took him into have special prayer over him, I truly had felt that last week was going to be the week we saw his healing take place. Well on Wednesday morning as I was sitting by his crib crying out to the Lord once again, knowing in my heart that God is going to heal him but just not seeing it I began to feel extremely discouraged, depressed and filled with despair. I realized that it was an attack from the pit of hell, some of you may not realize but if you are a Christian you will live in a constant battle against principalities and powers of darkness. That said, I begin to literally cry out to God and tell satan and his demons that he can not have power over me because when I gave my life over to God I was covered by the precious blood of Jesus Christ, when He died on the cross for my sins and since I've asked him to forgive me of my sins and to come into my heart He protects me and helps me do battle on a daily basis. Needless to say I came out of that prayer time feeling victorious knowing that God is going to heal Luke and felling the strength, joy and peace that only God can give to those that serve Him.

We decided to have him prayed for on Sunday after church, it is basically the first time that we asked the whole church to lay hands on him and to pray for a miraculous healing. It was a awesome time of prayer and we were told by Pastor John, who also happens to be my brother in law, that the Lord told him that Luke is healed and we are supposed to be giving thanks for that healing. Then last night Josh, one of Daniels friends that our family has all taken into our hearts, called with some great news, that as his father was praying for Luke's healing he told Josh the same thing that we had heard that morning, that Luke is healed and that his healing will bring great glory to the name of the Lord. I guess my prayer is that we will begin to see his healing this week and once again be filled with God patience knowing it will happen very soon.

We are hoping to leave this Friday for a much needed vacation. We plan to spend some time down on the Oregon Coast, one of our favorite places to go. Please pray that Luke will stay healthy and this will be a time of refreshing and renewing, as each of us needs a break from work and appointments. Thank you for your continued prayer support you are what makes the difference in our lives.

Love in Christ,
Luke's Mommy Sue

Wednesday, August 10, 2005

WOW, what a day!

Today started out very exciting to say the least. I was in the shower when I heard through the door Amy yelling with a panicked voice MOM, Luke just had his G-J tube accidently pulled out. I could not hear what she was saying and just hearing the panic in her voice thought, oh no Luke is not breathing and thinking how can that be since he was doing okay just a few minutes ago. But then I realized that she was saying that his tube had been pulled out, what should she and Natalie do. I immediately called the Dr.'s office and they put me on hold for a few minutes, finally she came back and told me that she had paged someone and they would call me back. Well I finished getting ready and still no call from the office, so I decided that I better take Luke into the ER so that they could tell me what to do. While I was driving the Dr.'s office finally called and told me to go ahead and go to the ER. When I got there I realized that I drove the car without any strollers in the back and had to carry Luke, his suction machine/diaper bag and my heavy purse, I was just about to go in the door when they called back to tell me to come to the office instead, needless to say I was out of breath by the time I got back to the car and over to the Dr.'s office. The nurse was able to put in a tube and told me that I would probably have to wait at least 4 to 6 hours before having the procedure done since he had just been fed through his g-tube into his stomach. I had resigned myself to think that I would be spending another day in the Dr.'s office and at the Hospital when the nurse came back and said that since Luke had only had about 50 mls go into his stomach they thought that they could get me in right away.

As I was on my way to the Hospital I had called a few family members and friends to pray and they in turn called even more people to pray, I thought about all of our faithful friends out there in blog land and I was wishing there was an easy way to let you all know. Needless to say, I felt the Lord going before us each step of the way. The nurse came back almost immediately and told us since it was such a small amount of food that they could take us over at the hospital right now. We were out of the Hospital by 12:00, which was awesome considering what we had been told earlier.

Here's an update on how Luke's Gastronologist appt went last Friday. After discussing with the Dr. our concerns about Luke's reflux problem that he has been having for a long time, we all thought that a Nissen Fundoplication was probably the best road to go down. Before we can schedule that procedure we first need to have a gastric emptying study done on him. So we go in tomorrow, Wednesday for a gastric emptying study, please be praying for Luke as he will have to lay on a straight board, for an hour, while they feed him some of his formula into his g-tube with some radio active fluid in it and then watch with an X-ray machine on a computer screen to see if his stomach is emptying okay. We will meet with the surgeon next Tuesday afternoon to talk to him about the results and whether Luke is a good candidate for this procedure. It will be at least a 5 day stay in the Hospital if we have it done we are not looking forward to that of course, but are hoping that it will make a huge difference in Luke's health.

Please be praying that God will continue to help Luke keep his lungs free from excess secretions and to keep him breathing smoothly. We've not had to use any oxygen for almost a month now which has been an awesome thing. We continue to see progress with Luke's arms, wrists and fingers relaxing on a daily basis and we are also seeing more of a bend in Luke's legs PTL. Our new PT has been showing me some wonderful ways to help Luke get more productive coughs and help him to be able to take big breaths of air.

We were blessed once again on Saturday. Phillip and KimDeBord, who we had never met before but have been praying for Luke and our family since last August volunteered to come over and pressure wash our home for free. What a huge job! Phillip also got our roof clean at the same time. We are now getting the paint picked out, we are going with darker green for the home and a light mint green for the trim. We hope to have the house completely painted by August 20th. Please be praying that it will go smoothly and that we will be able to get it done without any major setbacks. Also be praying that we will be able to take our camping trip in our trailer at the end of August, we all feel like we need some time to relax and just have a time of no schedules and some fun family time together. We hope to be able to go to the Oregon coast if Luke is healthy, one of our most favorite places to go.

We pray that our Heavenly Father will bless you with His peace and love today.

Love in Christ,
Luke's Mommy Sue

Tuesday, August 02, 2005

We continue to learn how to be still and know that God continues to heal Luke in His timing

Today was a great day for Luke and myself. I took Luke to a HBOT session and on the way to his PT appt from there he was moving his arms up and down, more than I've seen him move since the accident. Then at his PT appt. his PT set him up to try out some big switches, which are buttons that you push to make a toy go. He first tried an Elmo singing, he didn't seem that interested in it so we tried a train. He seemed to love the train and was actually pushing the switch to make it go, I started to cry happy tears as I watched him take true interest in the toy that he was playing with. She then put him into a neat little electrical car of sorts. All he had to do was hit the button to make it go and take his hand off it to stop it. He was making it go and he was holding up his head so well during his ride and then he actually stopped and started the car all by his self. I was so excited to see him doing something that he really enjoyed.

As I was reading in a devotional book by, Peacemakers Ministry yesterday it really ministered to my soul. The scripture was from Ps. 46:10 Be still and know that I am God. It said; Anxious soul, God is saying to you today, "Be still, and know that I am God." And there's a reason He's saying it. Your activity, when born out of anxiety, actually prevents Him from showing Himself strong on your behalf. That doesn't mean you're to be passive or lazy: it just means you're to do whatever, He leads you to do without running ahead of Him in the energy of the flesh! It also means you're to submit to Him first, then slow down and wait! In other words, make sure you have a sense of peace to go along with the ideas you believe He's given you. Ask Him to reveal to you His will in the matter, then"be still" and acknowledge that He's God. He's in charge, He knows what He's doing! Learn to trust Him without always demanding to know what He's going to do, when He going to do it and how He's going to carry it out.
Jesus said, "I am the vine, and ye are the branches" Jn. 15:5 Until you really embrace those words you'll keep trying to do things that only God can do - like blessing yourself, promoting your own minstry, solving your own problems, trying to get Luke healed faster and answering your own prayers. Or worse, you'll try to cover up for Him because you think He's not doing it fast enough, or in the way it should be done. Give it up! Try less and trust more! Jesus said, "I am the vine, ye are the branches." All you have to do is stay connected.

I thought that this was such a good devotional. As I was sharing with Daniel about the devotional and what the Lord had been dealing with me he had me read from Gal. 3:3 Are you so foolish? Having begun in the Spirit, are you now being made perfect by the flesh? I thought how right on with what the Lord is saying to me He began the healing in Luke on the day of the accident and since then I've been trying to get it to move along faster with all the treatments and programs etc.. I'm not saying that I think we should of sat back and did nothing but I am saying that I realize I can not hurry up his healing process, it has to be God's doing not mine. Oh, the things I am learning!

Thank you for your prayers for myself they are working. I really feel as I had a good prayer time on Sunday night that God heard me cry out and he is helping me to feel so much better. I've been amazed all day at how much better I'm doing, I ask my self why I'm amazed when I know for a fact that God is hearing all your prayers and He is answering them.

Please be praying that God will give Gordy and I wisdom in knowing for sure what to do about the Nissen Fundoplication procedure for Luke. We are feeling more and more like we should go ahead and have it done. We have a Dr. appt with his gastronologist on Friday to discuss it. I'm so thankful that God said in His word to ask for wisdom and He will give it to us, I feel confident that He will give us the peace that we are asking for in knowing His will for this sitution.

Love in Christ,
Luke's Mommy Sue