Saturday, September 01, 2018
14 years ago today my life changed for ever. I lost my precious busy, happy little boy, who had never really been sick, a little guy who used to play, feed himself, sing and talk. God gave me back a little guy who was dependent on a tracheotomy to breathe, a feeding tube to eat and was in a vegetative state, just starred off into space he had no emotions and was not given a lot of hope to live a long life, along with Dr’s saying he’d spend a lot of time in the hospital. I’m thankful to say he’s not been near a hospital close to 3 years:-).
If you had asked me 13 years ago if Luke would be walking and talking at 15 years of age I would of said “definitely” that’s how much faith I had and still continue to have in God for a miracle. I love Luke just as he is, he never has to accomplish anything to get my love, that said I will ALWAYS pray for more for him, more health, more healing, more joy, more independence, more speech, more laughter, more adventures, more life. . .
I truly thank the Lord for Luke and that his life has been spared 3 times from death. This roller coaster ride we’ve been on these last 14 years has been challenging to say the least, that said its also been full of many amazing answers to prayer. I’m continually humbled at the amount of people that tell me they still pray for Luke faithfully, it’s those prayers that have kept him alive and have kept us going.
I’m grateful that Luke has been healthy enough to go on mission trips, a trip across the country to Missouri to meet his brand new nephew, many camping trips up and down the west coast, a Make a Wish Trip to Florida, we as a family have always tried to include him in as much of our family activities as we are able. That said and to be perfectly honest the bigger Luke grows, he’s almost 100 pounds and as tall as his sister Lily, life gets more challenging. He can no longer shower in our trailer, if it wasn’t for Isaiah and Zeke we would no longer be able to take him camping with our current set up it’s just too hard to get him in and out of our Big Blue van, which to be honest has given us more years of enjoyment then most vehicles. And the only way to get him into our trailer is with one of his strong brothers carrying him up the steps. Even though it keeps getting harder, we will continue to do all we can to include Luke in as much as we are able, I thank the Lord often that I can still carry him:-).
Please continue to believe for Luke’s miracle because I know that God is able to do ALL things! Thank you for caring and for your faithful prayers!
Just curious to know if anyone still checks this blog?
Friday, August 29, 2014
10 years of heartache, 10 years full of hope, 10 years of pictures, 10 years of God's amazing strength
|Luke enjoying his 1st and only Birthday cake he's ever eaten
|Luke playing in some rocks a month before his accident
|Our family in Mexico a few weeks before his accident. We were picking up Daniel, Amy and Natalie after a missions trip they had just finished.
|This is the last thing I remember Luke doing before he was found dead in our pool, he loved to read books. He still loves listening to books to this day and will tell us by yelling if it's a book he's not enjoying.
|Luke at Disneyland a few weeks before his accident
|Luke loved to swim, this was a few days before his accident
|A day after his accident before he had a trach put in
|This was his last picture before his trach surgery
|He's still in the PICU right after his tracheotomy surgery
|Here he is leaving the hospital after his month stay
|2005 a year later sitting in our trailer getting ready to go camping for the first time after his accident
|2006 His first smile after his accident while we were in California getting ready to go to Magic Mountain
|2007 his first time to Sunday school
|2008 at the YMCA playing soccer in his new wheel chair stroller
|2009 He's getting bigger
|2010 No front teeth, we are at one of his many appointments, this one was up at Seattle Children's Hospital
|2010 A Christmas photo for the calendar Amy made that year
|2011 One of the many times he had pneumonia that year
|Luke at Mt. Rainier
|January 2012 Lily reading a book to Luke in the PICU, he was very sick with the flu
|After being on the design committee for the Mary Bridge Hospital new pediatric wing I was asked to speak at the grand opening, here we all are in front of one of the beautiful murals
|Our family received free tickets to a Mariners game where we got to go onto the field
|2013 Carefree days camping
|Luke at one of the many appointments he's had this year
|Luke's best vacation ever, first time since his accident he didn't get sick at all, it was AMAZING!!!
|Luke right after his ankle surgery, which he is still recovering from to this day
Love in Christ,
Luke's Mommy Sue
PS I realize that I don't blog often, I will be truthful to say I use Facebook more then the blog. If you want more up to date updates on Luke and our family just ask to be my friend on Facebook, if you can't find me e-mail me at firstname.lastname@example.org and I will ask you to be my friend.
PSS Last but not least I recently asked people on Facebook to write Luke a card/letter to let him know that you are still praying for him after these many years. Luke and our family has been blessed by receiving cards of encouragement from quite a few people that are still praying for Luke, thank you to those that have taken a minute to write, we really appreciate each one of you! We'd love to hear from you too, if you have a minute to send Luke a card we'd love to receive it:-)
Sunday, August 24, 2014
If it's true that a picture can say a 1,000 words then this post is the longest post I've ever made because it's basically all pictures
|For my 50th Birthday I wanted to spend the day in Paris, I got my wish I spent 10 hours in Paris on my way to Denmark with my sister Cindy to visit my brother Ray and his wife Lis.
|I can honestly say that while I enjoyed our time in Paris it was way too fast. We didn't even have time to have some of the wonderful food you usually have when you visit Paris.
|Lis and I on a walk through the dunes on the way to the North Sea
|In the middle of the North Sea and the Baltic Sea, it was amazing to see the two Sea's intersect
|Bud, Lis and Cindy at a beautiful lighthouse, that is sadly falling into the North Sea.
|Bud and Lis
|It was still light at midnight, it does something to your mind to have it light that late.
|We went to a deer park in Aarhus. Do you see that white deer it was an albino, I've never seen anything like that before.
|On one of them many walk/hikes we went on, behind us is the Baltic Sea
|One week after getting back from Denmark our family took off on a camping trip to Oregon. We had so much fun at Mt. Hood, OR. We spent one day at Skibowl which was a total blast for the kids.
|Luke went on quite a few 4 wheeling trips through the woods and on the beach, this was a river at the campground we stayed at in Mt. Hood
|We discovered a new beach Cape Kwanda in Oregon
|We spent some time in Newport one of our all time favorite places. Luke was so healthy our whole trip, the first time I remember going on a vacation where he did not get sick once and he actually went swimming at least 6 or 7 times.
|Amy and Lance joined us in Seaside and we had a great time down at the beach in Gearheart, we actually got a small baseball game going.
|We built a huge bonfire down on the beach in Seaside for the 4th of July, getting Luke down there was by far the most challenging places we went to as the sand was very deep.
|We went to visit Cape Meares Light house
|More highlights of our vacation. I especially love the top picture of Luke in our van, I caught both Lily and Ezekiel holding his hands at the same time, the smile on his face was priceless.
|After we got back from vacation Luke had a bunch of specialist appointments scheduled, thankfully they all went well with good news at some of those appointments.
|3 days after getting home Luke had surgery scheduled to have the tendons in his ankles released to help his feet to loosen up so that we could stop his feet from pointing up towards his legs.
|The kids had some friends over after one of the days they spent at VBS,they all signed Luke's casts:-) There is also some pictures of Luke at PT, he was having so much fun playing with another little guy there.
|My sisters Jill and Lori and Lori's grand daughter along with Lily and all went for a walk at Chambers Bay
|Luke's casts filled up with signatures and pictures
|Gordy and I celebrated our 31st anniversary by going out to dinner in Steilacoom and then went for a walk down to the waterfront to watch the sunset.
|Me and my precious grandson Iwan on Daniel's birthday.
|Daniel and Sarah celebrating their birthdays together.
|My Parents celebrated their 60th wedding anniversary
|Here is Luke and Penelope hanging out together
|After dropping off Ezekiel at camp, Lily and her friend Ellie and I went to Crescent Lake
|The kids and I plus some friends went on a hike up at Mt. Rainier, it was a gorgeous day!
|Our family was invited to a 70's Party. Luke got a new wheelchair but the specifications on it were all wrong so we are waiting for them to order a new one, which will be a good thing because he has out grown his current one.
|The kids and I went to the beach for the day, it was a very foggy cold day, but we had a good time in spite of the bad weather.
|Luke's first outing after getting his casts off. He did pretty good only cried once.
I'm actually planning to write another blog very soon as we are coming up on Luke's 10 year anniversary of his near drowning accident.
Luke's Mommy Sue