The Good News: I took Luke into his Pediatrician today and found out that his lungs actually sound good. Wow, I wasn't expecting to hear that, oh me of little faith.
The Not So Good News: Looks like Luke has his first official ear infection, along with some allergies going on right now. Which we think are the reason for all the congestion he is having, therefore making his O2 numbers low, along with the constant suctioning we've been doing for the past week.
The Good News: The lab techinician was able to get a good vein on her first try, she took 3 vials of precious blood.
The Not So Good News: I'm anxiously waiting to hear the results, wondering how his CO2 numbers will be along with his other numbers, hoping to be surprised.
The Good News: The Dr. took a look at Isaiah's arms today and prescribed a new kind of antibiotic cream, along with saying that it's good we have an appointment with specialist in a few weeks. What a blessing to have our great Dr. take a few minutes to look at Isaiah's arms, even though it wasn't his appointment.
The Not So Good News: Isaiah's arms still look horrible, he just can't seem to leave them alone, therefore they are not healing, please pray for them heal once and for all.
The Good News: I was able to get two nights of uniterrupted sleep last weekend when I went to visit my sister Lori and her husband Lonnie. I went over on my birthday, last Saturday and came home on Monday evening. It was so good to see them and enjoy the sunshine.
The Not So Good News: It was the only full two nights of sleep I've had all week long, last night being another nightmare night. I ended up sleeping on Luke and Lily bedroom floor as I just didn't have the energy to get up to go to my bed since I was having to suction him about every 15 minutes to keep his heartrate down and his o2 numbers up.
The Good News: I had a wonderful birthday! Our family went out to dinner at the Spaghetti Factory and then came back home for cake. I was blessed with some new shoes and some other great gifts.
The Not So Good News: After having such a great evening with family, I spent the rest of the night suctioning Luke, only got a few hours of sleep, thankfully my family let me sleep in.
The Good News: I lost another pound, down 26 pounds, half way to my goal.
The Not So Good News: Luke still weighs 47 pounds, he's been holding steady there for a long time. He's having a hard time gaining weight because he's been expending so much energy breathing lately.
The Good News: We applied and recieved financial aid from our local Hospital, which includes all of Luke's specialists and therapists. We will now actually get 55% off any amount that we have to pay out of pocket, which includes our co-pays, woohoo!
The Not So Good News: In order to have our bills reduced I have to call them everytime we get a new bill so that they will take off the amount, therefore I have spent many hours on the phone getting all Luke's medical bills taken care of, another draining task to fill my day.
The Good News: Amy and her very good friend Nicole took off to the Oregon coast to spend a few days on vacation, I hope and pray they have a great time and stay warm.
The Not So Good News: Amy will not be here to help the next few days, so if Luke has another bad night, which I'm praying he doesn't I won't have her here to help out in the mornings.
The Good News: I'm thankful that even though I'm absolutely exhausted beyond comprehension, God's never ending supply of strength is right there to help me get through this challenging time.
The Not So Good News: Sometimes because I am so exhausted I find myself in tears often, doubting whether God cares or even hears my pleas for help.
The Good News: I am so blessed to have such a wonderful family, great friends and all you out there in blogland that faithfully pray for Luke and our family, THANK YOU! We sure do apreciate your faithfulness.
Love in Christ,
Luke's Mommy Sue
5 comments:
Sue, I love all the good news and the contrast. Yippee for Luke, sounds like his lungs are starting to do a little better. Emily enjoyed the day of sun. Her nurse has an app on her phone that copies what you say and repeats it in chipmunk voice. Emily laughed and laughed over that. She even made noises and the chipmunk repeated her noises. That was hilarious. I'm sending Luke some hugs. Still praying!
Michelle & girls
I had a kid with the same thing your boy , Isaiah has . After a bunch of Doctor visits and various treatments , this old woman told us to try baking soda in the bath water ,, we tried it , put in a good amount of the baking soda , and the bumbs , rash , looking thing cleared up , Praying for your entire family ,,
Lord, please give Sue the rest she so desperately needs. Please heal Luke. Please hear our prayers and answer quickly.
God bless you this Mother's Day,
Jean
Sue,
What a Praise that you have a heart of Gratitude and see the silver lining in every cloud because as a child of the King you have the mind of Christ. So thankful for all the praises and acc. to His word to give thankds in ALL circumstances even for the "not so good news" pieces becuase He works even those for the GOOD of you who love Him and have been called acc. to His purpose. What a HUGE PRAISE about the report of Luke's lungs sounding GOOD!!!! Conintuing to stand with you in prayer for Luke's complete healing and strenght, joy and peace for you in the journey! I love you! Mary
Hi Luke,
My name is Jenna and I came across your site, U are a brave courageous fighter and an inspirational hero.
I was born with a rare life threatening disease,
www.miraclechamp.webs.com
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