Today was a great day! I wasn't sure if I would be able to get out of bed after only getting a few hours of sleep last night, but I was so glad I did. Even though Luke is doing really good during the day lately, nights still seem to be a challenge with his oxygen numbers going too low, but thankfully the joy of the Lord was my strength today and I ended up with enough energy to make it through the day, even ended the day with another 45 minutes of exercise this evening.
Guess what??? Luke received this beautiful quilt you see in the picture above from a sweet group of ladies, The Circle of Hope, they volunteer to make quilts for children that are medically fragile. Luke's name had been on the list for over a year and he finally got his beautiful amazing quilt. The picture is not that great, I will try to get another picture of it posted here to show you how amazing it really is, thank you Kate, you are amazing.
Today after church we went to our local Godfather's pizza to celebrate my niece's birthdays, Janell turned 21 this week and Naomi is getting too old to say her age, haha. As you can see by the pictures it was wear a fake mustache day. Luke wore his for a few minutes before it finally feel off. He really seemed to enjoy himself there surrounded by so many people that love him so much.
Natalie made the cute cupcake hats both Naomi and Janell are wearing, they turned out so cute, with the sprinkles and cherry on top. I keep telling Natalie that she could make some serious money if she would take orders for hats, afghan blankets, sweaters, shawls, scarfs etc, she is so amazingly talented.
After we came home from Godfathers, Natalie and I went on a power walk, had to walk off the pizza we ate. We than played a very fun game of Settler's of Catan. As you can see Luke is enjoying the game with us, he usually sits on my lap while we play family games, I call him my good luck charm.
Here we are messy hair and all, Luke, Zeke and I played on the same team and got stomped by Daniel.
The day wouldn't be complete without Amy "stealing away" my camera to take about a dozen plus pictures of her and Lance her boyfriend. Some of them were pretty crazy shots, but I thought I would be nice and post a sweet one.
Next week will be very full with appointments for Luke, hoping to get him into the HBOT chamber at least twice this week. Praying that I will be able to get more sleep at night, I know that it would help me immensely to be able to get up earlier in the morning, for as you all know mornings are the best time of the day to be productive, at least I think this is true for that is what I've been told. Please be praying that Luke will stop alarming at night, it is so unnerving to be woke up constantly by alarms, Friday night was a nightmare, I was up every hour at least once, thank goodness last night was a little better, at least I got a few hours of uninterrupted sleep. I'm so thankful that God is always by my side giving me the strength that I need to get through another day!
Love in Christ,
Luke's Mommy Sue
2 comments:
I would SOOOOO buy one of those hats.... they are super cute and I happen to love to bake cupcakes so it would be cool for me. LOL She really should sell that stuff.
Thanks Lisa I will let Natalie know you are interested.
Sue
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