Monday, February 13, 2006

What a day!

Today was a big day for Luke! Both he and I woke up not feeling so great. He has been struggling with a cold and congestion for about a week now, needing his nose to be suctioned so that we can get all the gargage out of him. I had a sore throat and sounded like a frog, I guess I would of loved rolling over and going back to sleep, though that just wasn't going to happen. I had been looking foward to taking him into the Dr. to let them see how wonderful he had been doing lately, well that just wasn't to be today. I dreaded taking him in as I knew that I once again had to tell the Dr. that Luke has been doing great lately, he's just once again having a bad day and you are seeing him on a bad day. I wonder if they think that I'm just a crazy mom, who is delusional and can't really see the reality of what it is to have a child like Luke.
I guess we kind of got a good report in that both our Pulmonologist and Gastronologist told us we don't need to return for 6 months. Silly me, I was hoping and praying that they would see some of the changes that we are seeing in Luke, why do I care so much? One of the Dr.'s did say that he seems to be doing good and that should of been enough. Our Gastronologist did decide that we can schedule a swallowing test to see if we can begin to feed Luke into his mouth again, that would be a huge step forward for Luke if he were to pass this test.

Some days I feel so discouraged and know if it wasn't for those that are continually uplifting our family in prayers, I would begin to feel hopeless. I will be honest it is so hard at times to keep such a strong faith and yet I will never stop believing and knowing that God is going to heal Luke and one day I will be able to take him back to those wonderful Dr.'s and show them a walking, talking miracle boy.

My heart has been heavy for some other precious children this week, I learned a few days ago about a little 2 year old that drowned in the bathtub last week, it is so similar to Luke's story and they are not giving up on his miracle, please pray for Brett Jr. his blog site is, I have also been praying for a little girl named Candace Joy she has been very close to death this past week as she has been fighting off some very bad infections, her site is I know many of you read the comments and some of you may of read about Joanna, her mom Amy has been praying for Luke for a long time and now her little girl Joanna has been diagnosed with cancer and needs a miracle from God. I've also been praying for a sweet prayer partner, her name is Shirley, I've never met her personally, but her and her husband pray for Luke and our family every day and now she is struggling with an very serious infection in her hip. So many major prayer requests, I'm so thankful that we serve such a BIG GOD!

Just to let you know our Nurse Mary is coming back to work this Wednesday, it will be great to have her back two days a week, we still don't know if our Insurance Company will continue our nursing past this month, they are still reviewing our case. I am praying that God will have favor upon our family these past few weeks without some help have really been fatiguing on me, though I'm thankful that God has given me great energy each day to get most of things done that I need to do, I'm just finding that I don't get a lot sleep each night and know it's bound to catch up someday.

Some of you may already know that Amy is going back to Romania on a missions trip. Her and I went two years ago and she has known for many years that she would like to go back to minister again some day. Well God has given her the desire of her heart and it has been so amazing to see His provision to pay for the trip as people have felt lead to help support her as she goes. She will be ministering to the children of the Women that are attending a Women's conference, this conference has changed many lives as they have learned that there is hope in there in the hard and sometimes hopeless lives they live. Please be praying for her as she will leave on February 27th, she will be gone for one week, we will miss her greatly but are joyful that she is going.

I would like to wish you all a Happy Valentine's Day,
you are all very precious to us!

Love in Christ,
Luke's Mommy Sue


Carmichael Family said...

Praying for Luke today. Prayers for swift healing and God's touch on you both. God bless!

Pam&Hal said...

Happy Valentines Day to the entire family. Wish I were there to give each and everyone of you a hug. Of course, it means that I would be getting quite a few hugs myself ;-) You are always in our thoughts and prayers.
Love, Pam

Anonymous said...


Would you be willing to contact the parents of Brett jr.? They have a link for email if you would write them. I think they would like to talk to you.

Anonymous said...

I just wanted to say what a blessing it has been to read your blogs. I received your link thru Brett Jr's site, and I have been truely amazed at the strength God is giving you to raise 7 children, including Luke. I can't even begin to comprehend what your day must be like!! God bless you all!! It has shown me that my problems are amazingly small. God Bless you all!!!

Anonymous said...

Hello Sue, I am so glad that Mary is going to be back to help some. We are praying for you guys. I know that you are going to miss Amy....I bet you would love to be right with her. We will/are praying for her. On the update for JR they are wanting to talk with your family. I know that God will use you and Gordy in their life. We love you guys.

Blessings, Shane, Julie and Children

Anonymous said...

i also got your site from brett jrs site and they are really wanting to try to get you in contact with the parents. your story is very encouraging to all and would be especially to brett and yvonne (jrs parents). if you contact them through his site they can get you the number. also jr is scheduled for trach. surgery this morning at 10am. luke has been added to my prayer list.
God bless

Mommy_2 said...

It was so nice to be able to talk to you. Once I hung up last night and my daughter realized you were "Luke's Mom" she and her younger brother were very excited as we pray for him each day.
I have given Brett's family your numbers. They emailed me back and told me the family will be trying to contact you today.
Luke continues to be in our daily prayers and is always on my heart. Thank you so much for sharing with all of us.
Many prayers & much love to you all.
Darla Tilley
Rose Hill, KS

Loni said...

Hello Sue - Ohhhh.... I can relate so much with the ups and downs and yet I know what a Great Physician we have that will continue healing Luke. My heart goes out to you with the weariness of it all. Thank you for your continual sweet notes to us, and for understanding so much of what we are going through too. It means a lot. :)

Love, Loni

Anonymous said...

Hello Little Luke, Just wanted you to know that we are praying for you and love you! Hope you have a wonderful day! Love and Blessings, Shane, Julie and Children

Teena said...

Sue, I am sitting here thinking of all of you. I am praying for Luke. May God continue to renew your strength... each and every day. I am so thankful Mary is coming back~ will be praying about the insurance stuff. I am also thinking of Amy~ and we will pray. Mandi so wants to go on a mission trip. I know she would love to talk to Amy sometime. Sue, I am thinking of you so much as a mom of 6 and NOT in your shoes... and I still get weary. Sue, you are such great testimony~ being real, and showing us your heart. We too, are praying for Candace Joy. I will check out Brett's journal. I can see where the Lord is using your family to meet, encourage and lift them up to our Heavenly Father. YOU are so very special to us~ hope to talk again soon~
our love...
your GA friends,
Billy, Teena, Michael, Mandi, Dakota, Alyssa, Wyatt & Wesley

lockwoods said...

I have been thinking of you all and Luke even more than usual lately. I have never had to face a serious illness with any of my children until now, and I can appreciate what you are going through even more. Thank you for praying for Joanna. We really appreciate it. (major understatement) What we have found out is that she has a genetic disease called Gorlin's Syndrome. One aspect of Gorlin's is Basal Cell Carcinoma (skin cancer). It is so overwhelming to have to learn all these medical things and find doctors and decide treatments. We really need wisdom. You should know that Joanna and Josiah faithfully pray for Luke before every meal we eat, and before bed. Josiah talks about getting to meet Luke one day. They are almost the same age, as are Chloe and Lily.
I hope you are able to not worry about Amy while she is gone, and that she has a wonderful time.
We love ya'll!
The Lockwoods
(Mark, Amy, Elijah, Tabitha, Joanna, Josiah, and Chloe)

Teena said...

Just wanted to stop by today and say HI... we are on our way to a field trip with a natural biologist that will show the children (other hschoolers too) some traps, skins and such. But wanted to let you know I am thinking of you and praying for Luke. Hope both of you are feeling MUCH better~
your GA friends
Teena and the gang!

Carmichael Family said...

Thinking of you all today and praying that you and Luke are feeling better. God bless,
Catherine and family

cathy walsh said...

Thank you for praying for my Candace Joy. It was a blessing to find your website and keep little Luke in prayer. We will post a link from Candaces website to yours. Perhaps you could do the same and we could join forces with all these prayer warriors for children! Candace got word on Friday that the infection she has been battling is in her right hip.

In Christ,

Cathy Walsh (mom)