Tuesday, January 30, 2007

We hope you take a close look at these beautiful Romanian bowls

Amy and Natalie are going on missions trip to Romania in March, they each need to raise $2000 to go, therefore one of the ways they are raising money is by selling some beautiful Romanian bowls. Amy bought these bowls last year while she was in Romania she put them aside for using them as a fund raiser to go back. We have two pictured here just to show you what they look like, though the pictures really don't do them justice. If you go to Amy's blog you will be able to see all the bowls that she is selling. We appreciate your prayers more than anything you could donate, as we know that God will supply all of their needs according to His great riches. They leave on March 1st and will not be home until April 1st, they are also going to visit their Uncle Ray and Aunt Lis in Denmark along with Daniel, who will meet them in Amsterdam after they go to Romania for two weeks. Their Uncle has generously volunteered to pay for all their expenses during their visit to Denmark, what a great blessing from God! I'm going to need a lot of prayer, during the time they will be gone, as I have mentioned before the girls are my right and left arms, they do more for me than you can possibly imagine, though I know I can do all things through Christ who strengthens me.

Just a quick update on Luke, he is doing better, he did end up having a few rough nights last week, but he was fine during the day. Please pray that we will figure out what is causing him to have these fevers at night, they do not come every night, but often enough lately to be of some concern. We are currently increasing his feedings so that we can get some weight on him, please pray that this will go smoothly and he will begin to gain the much needed weight that he needs to keep healthy.

Love in Christ,
Luke's Mommy Sue

PS I have another prayer request: Last night I went up to Seattle Children's Hospital to visit Zack again, who is doing great by the way. While I was there Zack's mom, Ruth introduced me to a family who have little Elijah who is 7 months old in the PICU, he was born with Downs Syndrome and has had two heart surgeries since his birth. He has been in the Hospital since November 20th and is currently not doing very well. Please be praying that God will work a miracle and raise this little one up for the glory of God. It was so hard walking into his room, the emotions that flooded me were very strong, but I also felt God's presence surrounding the little guy as I was able to pray for him.

Wednesday, January 24, 2007

Double blessings to report on knee bends and vision tests

I know that I just blogged a few days ago, but I had to share some good news with you all. Yesterday at physical therapy, Luke's PT Sara, was working with his legs and had him sitting up and he did great. He actually had a 40 degree bend in his knees, the best she had ever measured before was only 20 degrees, so we had a double blessing in the bending. He was also sitting up and holding his head up so wonderful, I could see that she was impressed, I've been telling her for awhile that he is sitting up so much better these days, in the bath tub he can actually sit up for a few minutes each day without help.

Today I took Luke to his Optometrist, he specializes in child with brain injuries. I left there shouting Hallelujah. Luke did an awesome job on his eye tests, the Dr. was very impressed with his progress. Last February when I took him in he was not even looking at the wheel to test his tracking abilities and today not only did he look at it he was able to measure his progress at a 60 - 70 percent success rate. His vision has also improved 50 percent. Once again a double blessing in his progress. The Dr. also talked a bit about his startle reflex, he is going to look into some information from another Dr. and get back to me on some exercises he thinks would be beneficial for Luke. He told me he would like to see him again in about 3 weeks.

Even though we've hit some new major milestones, my heart is feeling very confused tonight. One on side I'm rejoicing with his accomplishments and on the other side, I'm concerned because he is not feeling well once again tonight. He is running a high fever and he is on lots of oxygen right now. It just kind of hit him all of the sudden tonight. My heart is also sad with some news that we found out tonight, that little guy Joel that I asked you to pray for went home to Heaven today. I realize that he is in a much better place, but my heart is so heavy for his parents and siblings that are left behind to mourn his death. Please be praying for his family as they go through this tough time.

Once again I am humbled by the fact that so many people are still faithfully praying for Luke's complete recovery. I was looking at Teena's blog tonight and she had Luke's picture up with a little story about taking his picture to church this last Sunday to have others in her Sunday School pray for him. I also ran into a friend that I haven't seen for a couple years the other night and she told me that she reads Luke's blog often, it's amazing to me that people are so interested in our family, at times it makes me feel uncomfortable, but at other times it brings such great joy into my heart just knowing that so many of you are still praying for Luke and our family. THANK YOU FROM THE BOTTOM OF MY HEART FOR YOUR PRAYERS, THEY ARE MAKING A HUGE DIFFERENCE IN LUKE'S LIFE!

Love in Christ,
Luke's Mommy Sue

Monday, January 22, 2007

I've been reminded once again that it is easy for Jesus to heal and forgive sins!

I did end up going to visit my sister and her husband, along with Amy, Isaiah, Ezekiel and my Mom. We had a great time, the only icy portion we hit on the way over was in Western Washington, it was so weird to see snow on both sides of the Mountain. Usually we have to go to Eastern Washington to see the snow, but we actually had snow that lasted for about a week, most of us that have lived in Washington for a long time can't remember the last time the snow has stayed around that long. Uncle Lonnie and Aunt Lori had all kinds of fun things for the boys to do, Uncle Lonnie works for the Washington State Department of Transportation and since he had a slow day on Saturday he offered to take the boys for a ride in the big trucks that he drives, to sand and plow the roads. To say that the boys had a blast would be an understatement. On Saturday evening we went to Pizza and bowling and had a great time! The best part of the trip for me was that I actually had some awesome nights of uninterrupted sleep and came home feeling pretty rested.

Luke and Lily had a wonderful time at Tio Juan's and Tia Yoli's home. Lily got her appetite back after a week of eating close to nothing, she made up over the weekend by eating more then you could imagine. Luke did so well that Yoli called me late Saturday night to see how low Luke's heart rate should be before being concerned, it was at 95 and she thought that was low, I told her that if it gets below 60 then I would be concerned. It's interesting that his heart rate has been lower at nights lately, just showing us that he is so much more relaxed and feeling good lately. He has also hardly had to have any extra oxygen at night which has been awesome.

As you know I could go on and on with too many details of this past week, but I will try to narrow it down to Friday. To say that Friday was a stressful day would be putting it mildly. I began the day by getting up early so that I could get the kids fed and dressed before Luke and I went to what I knew would be a full day of appointments. We began with our first appt. with a physiatrist, which is a rehabilitation Dr. He usually helps people get the equipment they need to get kids on the road to recovery. I had heard great reports about him from a few other people, so I was thinking it would be a good appointment. It went okay I guess, he requested x-rays of Luke's knees to see if there is any structural damage, since his legs are so twisted, they have a scissor look to them. I know that I've mentioned time and again about the problem we've had bending his knees. He is the third Dr. I've seen that has mentioned that Luke's tone is opposite of most kids like him. He told us to come back in 3 months that he would try to get some information on some things that would possibly help him out, he suggested new leg splints, like the ones he had a long time ago, I told him that they were very expensive, they cost us close to $1,000 after insurance paid there part. He said he would check to see if they have any grants to help out, I guess we are going to just have to wait and see at his next appointment in April. I was a bit disappointed in the fact that he didn't want to see us back a bit sooner, but I guess if you look at Luke from his standpoint, what is the hurry he will be like he is the rest of his life. I was a bit discouraged when I left his office.

I went from his office to sit in the x-ray sitting room for 30 minutes got the x-rays done and went straight from there to the Dietitian's office, where I was very disappointed once again. I guess that Luke lost a pound when he was sick last week, he has basically not gained any weight for the last year. Though he looks healthy, he is very skinny. The Dietitian said we need to keep a close eye on him to be sure he gains some weight in the next two weeks. Please be praying that God will help me to know what to feed him, his diet is very healthy, but we are just not able to get enough calories in him to make a difference.

On my way home after being gone for 4 hours, I got a call from home saying that one of Luke's pillows had been dryed in the dryer and had basically burst open filling the dryer with millions of tiny balls of Styrofoam, Natalie had been vacuuming it out for over an hour and had not even come close to getting it all. I told her to try to start the dryer to see if it would collect in the lint area, needless to say about an hour later of cleaning it up I heard Natalie yell in a panicked voice, "MOM, THERE IS A FIRE IN THE DRYER," sure enough I ran down the stairs and we had a fire. I knew that we keep a fire extinguisher in the closet so Natalie ran up to get it, while Amy is yelling should I call the fire department, I told her not yet. I sprayed the extinguisher into the dryer and thankfully it went out easily. Needless to say our home smelled horrible for awhile. We were blessed to find another used dryer on Saturday for only $75, we've been using it today trying to get caught up on our massive laundry, since we've not had a dryer for a few days.

Last Sunday I went to my sister's church and the pastor that day had an excellent sermon. He told us a story from the Bible about the sick man who could not walk and was put down through the roof of a home on a bed, for Jesus to pray for, the room was so crowded they couldn't get him through the door. Well, Jesus said to him your sins are forgiven, he rose up and walked out of there healed. The pastor made this statement, it used to be in Jesus' day people could not understand how Jesus could forgive anyone's sin, It was hard for them to believe that He could do that, but it was easy for Him to be able to heal someone, in there eyes. Today it is just the opposite in many churches today, people believe that it is easy for Jesus to forgive sins, but it is not easy for him to heal people. He died on the cross to do both forgive us for our sins and to heal us of our sicknesses. It's easy to get discouraged, as I have been many times, to continue to believe when we don't see the results that we want right away, but I know that I can't quit believing because, I know that Jesus died for me and He loves us all the same. He is just waiting to forgive sins and heal people, all they need to do is ask. If you've never done this before it is easy to do and you will be amazed at the peace and joy you will feel, you will never be the same again.

Love in Christ,
Luke's Mommy Sue

PS Please continue to pray for Melissa and her family as she is near the end, without a miracle. Also for a little guy named Joel he needs a miracle too, his web site is http://www.weloveyoujoel.blogspot.com. I know that I asked for prayer for Zach also, he is a little guy that is battling Leukemia, I've had the opportunity to go up to Seattle to visit with him and his mom Ruth a few times and have really enjoyed getting to know them both, he is actually doing great and is home right now, but will be going back to the Hospital for another 5 months sometime next week, his site is http://www.prayerservant.org/zack/gallery.shtml

Friday, January 12, 2007

Luke and Lily have been bit by the flu bug

I wanted to let you know that both Luke and Lily have been struck with the flu that seems to be going around. Lily got it last Saturday and seemed to be doing better, until she threw up tonight again. Luke got sick on Tuesday morning, he woke up doing great and within 2 hours he was throwing up, had a high fever and seemed to be miserable. He was not able to keep anything down until Wednesday afternoon. On Tuesday I held him all night and only got a few minutes of sleep, he seemed to just want to be held as he would almost moan when I would put him down. Today he is doing better, we are starting his food back slowly and he has done pretty good, except for a few times of gagging, because of coughing. He also has very bad diharrea, so we had a few extra loads of laundry today with Lily and Luke's messes. Once again through this sick time his oxygen has been holding steady, which is a huge answer to prayer. Tonight Gordy went into his room to turn down his oxygen, only to find out he is not on any, that is how good his numbers are.

Lord willing, I'm taking Isaiah, Ezekiel, Amy and my Mom to go visit my sister Lori and her husband Lonnie, this weekend. She lives about 5 hours away on the Eastern side of Washington and is usually blessed with lots of snow, so we like to go visit her so the kids can play in the snow. Though we were treated to some days of snow ourselves the past two days. Please be praying that we will be able to go, that Luke and Lily will wake up feeling great in the morning, that the roads will not be too icy and that all the other little details will fall into perfect place. Once again my friends, Yoli and Juan are volunteering to take Luke and Lily for a few days, they enjoy having them and the kids love going to their home. Gordy is unable to take off any time from work right now so he, Daniel and Natalie will be holding down the home front. I am hoping to have some wonderful full nights of sleep, I am needing to get caught up in that area of my life. I call Lonnie and Lori's home my retreat center, as it is usually very relaxing and peaceful there.

That's all for now. I will write again next week to let you know all the little details of what is going on in Luke's life. He has some big appointments coming up. Be blessed today.

Love in Christ,
Luke's Mommy Sue

Monday, January 01, 2007

Happy New Year, I can't wait to see what God will do in 2007!

I hope and pray that you all had a blessed Christmas and you brought in the new year with great joy in your hearts. We had a great Christmas, it was a busy time for our family, but filled with lots of good memories and great times.

Luke has been doing absolutely great lately. He is becoming so much more limber all the time, today as I was holding him Natalie was playing with his hands and commented on the fact that he is so loose, then when we put him in the car on the way home from Grandpa and Grandma's home, Gordy thought something had happened to his shoulder, he was so loose and flexible. I have been able to get in 8 HBOT dives the last 3 weeks, it has made things a bit more crazy, but the time and money has been well spent as we are seeing great results from them. My dad also commented today on how much more expressive he is getting all the time. He seems to have more pleasant and happy expressions than bad ones, which is such a change from last year at this time.

I mentioned to someone the other day we have hit a huge milestone in Luke's journey, it almost makes me a bit nervous to mention this, but I will, he has gone 8 full months without any visits to the hospital, the longest he has ever gone in the past was 4 months. PRAISE GOD, I know that God is making the difference. He's actually also only been on one antibiotic during that time. There have been a few times that we probably could of taken him in, but God has ALWAYS been faithful in healing Him in record time.

One more absolutely great thing to share is that he has finally stopped throwing up all the time. I can not even begin to let you know what a relief and absolute joy this brings to my heart. It is stressful enough going through this journey with all it's challenges, but the fact that your child throws up almost every time you feed him is almost beyond what one can handle. I'm not really sure exactly why it has stopped, except to say that we've tweaked his diet a bit more and the digestion supplements we've added finally seem to be doing their job, along with of course the wonderful touch of God on his life.

We've finally decided it's time to get Luke a wheelchair, to say this was a huge and hard decision is to put it mildly. We have been able to get away with using a stroller, but Luke has finally out grown his stroller and we've noticed recently that we actually have to pick his feet up to move the front wheel at times, as his legs have gotten too long. I actually carry him most of the time, so we don't really use his stroller much, but the times that we need it is important to have one available. I do believe that he is finally putting on a little weight, which is a great thing, therefore he is getting heavier to carry, which is can be taxing at times. I just thank the Lord that He has made me strong and that He continues to keep my back healthy.

I would like to ask for prayer for, Melissa Snow, her site, Pray for Melissa has been under one of Luke's links for about a year now, she is dying of a brain tumor. She is a precious Mama to 7 children, they along with her sweet husband is in much need for prayer, as she is near the end, without a miraculous touch from God she will be gone soon. One other prayer request is for a little guy name Zack, he is currently suffering from Leukemia. He is in Children's Hospital in Seattle for 6 months of treatments. I am hoping to go up there to meet him and him Mom this week, we have talked on the phone but not met in person. He and his family have been in my prayers a lot lately, he is also from a family of 7 children, just like our family and the Snow family. I hope to add his site to our list soon, it is http://prayerservant.org/zack/blog/index.shtml.

May God richly bless you this year, I pray it will be a year filled with His goodness, that God will do a new and wonderful thing in your life today.

Love in Christ,
Luke's Mommy Sue