BIG little steps.

I realize that the title of this blog is an oxymoron, but there is no other way to describe Luke’s progress to you. You see some people look at Luke and all they can see is a child that can’t walk, talk or do other normal things kids his age are doing, but we look at Luke and we see all the things that he was unable to do just a year and a half ago and therefore are encouraged that he continues to make progress be it ever so slow at times, it is still progress and we are thrilled to see it happen on a daily basis.

Luke’s Physical Therapist suggested making an appointment for him to see the Neurologist to get his opinion on some options for helping his muscle tone get better. I know that I’ve mentioned numerous times that Luke needs prayer to help get a bend back in his knees, they are still for the most part rigid and strait all the time. To say I was a bit anxious about going to a Neurologist would be putting it mildly, the last time we went to a Neurologist I left there in tears and depressed for days, because of the hopelessness the Dr. gave us about Luke’s condition.

This was a new Neurologist and I was encouraged to see his reaction to how Luke is doing. I told him Luke’s history and how we have seen continuous progress, be it ever so slow at times. It was so exciting for me to see Luke respond each time the Dr. would check Luke for a reaction as he touched his feet, legs, hands, fingers and arms, he would not only move each limb he would also react in his facial expressions. I was especially excited when his PT came in and Luke immediately looked up at her and responded to her voice, the Dr. said boy he really knows you doesn’t he. I felt like standing up and shouting Hallelujah, because a Dr. has finally acknowledged that Luke is not only responsive, he is also tracking, seeing and showing emotions to someone he likes.

It felt so good to leave an appointment feeling encouraged instead of discouraged. As for the Botox and other options for Luke’s legs, he felt that it wouldn’t really help Luke right now because of the muscles that are being affected. He did mention that eventually Luke would probably need surgery to help stretch his muscles to get some movement back into them. I’m praying that God will continue to work His mighty miraculous touch in Luke’s life and that we will not need any more surgeries.

Luke continues to smile on a daily basis we almost caught one on camera today, as soon as we do we will blog it for you all to see. I told him when he smiled at me this morning that was the best Mother’s Day gift I could get, just seeing all my children smiling and happy make me happy. I was spoiled today by being served breakfast in bed and being served through out the day, along with a gift certificate to go get a pedicure and manicure done.

One last note in this already too long blog, is we decided last week that we needed to once again change our trip plans. We are now going to take a trip down the California coast and spend some time in San Diego, LA and finish up one the Oregon coast. We are hoping to spend 4 days down in Mexico working with a Pastor friend, of ours. His church is in the progress of building a new church and we would like to go down there and be put to work for a few days, helping where ever is needed.

Thank you for your continued prayers and support. Please be praying for Luke that he will stay healthy, that his lungs will stay clear, that his oxygen levels will continue to stay up, that his legs will begin to bend, that he will begin to show even more smiles and that we will hear him laugh again soon. May God richly bless you today!

Love in Christ,
Luke’s Mommy Sue