Monday, September 11, 2006

Luke gets an awesome report from his Neurodevelopmentalist evaluation

I want to begin by saying "thank you" for all your wonderful comments, it continues to amaze me that so many of you are still faithfully praying for Luke's recovery and reading this blog. So many of you have become wonderful friends even though we've never met in person, I just hope that someday I will be able to meet many of you face to face.

My sister Cindy and I took Luke up to Anacortes which is about a 2 1/2 hour drive for a Neurodevelopmentalist evaluation. It was will worth the drive as we received such a wonderful report. She was very encouraged by what see saw with Luke's progress. She said that he is definitely following commands, has sensation in all his limbs, is much more interested in what is happening around him, is ready to start moving with help and his muscles seemed to respond when she put him on his stomach with his arms in front of him and moved him forward. She thinks with a lot of stimulation and encouragement that Luke should begin to reach for toys very soon. When she asked him to reach up and touch my hand he actually did a few times, to say that we were excited is putting it mildly. She thinks that if we are faithful in doing the program she set up for us that we will begin to see big changes in Luke's abilities.

My prayer is that we can find some people that would be willing to help a few days a week to get Luke through all the exercises that she gave us to do with him. My sister Cindy said that she is willing to come over daily to help with Luke's feeding and program, I can never even begin to tell you how much this will help out. As I've said before it is very challenging to try to find the time to get all that needs to be done everyday, with Lily's care, homeschooling the children, keeping the house clean, cooking, going to the YMCA for PE and choir, piano lessons, Luke's PT and other appointments, you get the picture. I am really excited and hoping that this year Luke will stay healthy so that we can really get on a good schedule. I recently read in a book that said the only schedule we really need to live up to is the one that we fell the Lord is directing us toward, so I'm really praying for wisdom in knowing exactly what He wants me to accomplish each day.

We had a great camping trip, the weather was beautiful, we had some awesome days at the beach, we ate some delicious smores as we sat around the camp fire, played some fun games and Luke stayed healthy for the most part, though he had a few rough nights. We had a few unwelcome guests the raccoons decided to get into our food, they ate a whole loaf of bread, 9 eggs and drank quite a few of our sodas, or it could of been the skunk we saw run through our campsite.

Specific prayer requests for Luke, he continues to struggle with his feeding times, he continues to gag and throw up at least once a day, today though was one of the best days he's had in a while. Continue to pray that the congestion that he deals with so often will clear up once and for all. Last but not least the same prayer request that we've been asking for faithfully all these past two years is that his legs will become limber, that his knees will bend normally and his feet will come to point forward again.

I know many of you have been praying for Gabby, as her link is at the side of this page. I just want to ask you to keep her family in your prayers as she passed away on August 31st. It's hard to know why God chose to take her home at such a young age, but we know that He is sovereign and His ways are not always what we would chose. Her mom has been a blessing in my life, though I've never met her in person her blog has really ministered to me in ways I cannot begin to express.

May God bless you and keep you in His arms of love today.

Love in Christ,
Luke's Mommy Sue


Bindress said...

Thank God for his work in Luke's life!
I love his smile!

annie said...

That is just awesome Sue and I am smiling ear to ear for the gains you have made with Luke, praise GOD!!!
You are right, the program takes help and commitment! My mom comes for one session, Matt & Bailey (son, 12) do an early morning session and then I have a two people and my dad for our mid day session. We are trying to find a spot and helper for a fourth per day... it will happen.
Luke remains in my prayers and I am thanking God for healing Luke from the top of his head to the tips of his toes.

Anonymous said...

Its great to hear all the progress! My son drowned in Oct 2005 and I am always looking for new ways to help him. What program do you have him on that is helping his mobility?


Anonymous said...

Rejoicing with you that the ND affirmed so greatly what you have been seeing in Luke! Praise God! It's so nice to get a gust in the sails now and then, isn't it?? Can't wait to see what the new version of the program will do for Luke. Praying that the Lord sends just the right helping hands! Big smiles on our end tonight -- we're so excited for you!


Teena said...

what a wonderful praise report... I am so thrilled as I know you are. God is HEALING Luke.. small baby steps ... but HEALING.

Have you ever heard Healing Rain by Michael W. Smith? Mandi signed/lyrical movement to this at our church this past Sunday.

I am praying for you as you seek His face on your schedule it is so true... ONLY what God wants.

I have missed your calls.... we need to talk.... Life has been sorta crazy here.

we love all of you.
Your GA friends,
Billy, Teena, Michael, Mandi, Dakota, Alyssa, Wyatt & Wesley

Anonymous said...

Gordy & Sue - We continue to be amazed at how much we have in common once again. We have Matthew on the ICAN program with Cyndi as our Neurodevelopmental Specialist. It sounds like you may have seen her yourself to help Luke. Matthew has been doing the program for a little over 2 months and we are starting to see improvements. You are right - it is a lot of work. We would love to talk to you more about it and be able to encourage one another. You can e-mail us at

Still praying,

Phil, Kim & Matthew De bord

Julie in NC said...

Sue, I just wanted to stop in and let you know that we are still praying for Luke's healing. Our home is a little crazy with my kitchen being out of order...we had a death in our family and had to travel to MS. I have been up praying for you and Luke the past two nights. I love you guys and look forward to the next update on sweet Little Luke!
Blessings, Shane, Julie and Children

Teena said...

just stopping by to say hello~

praying for all of you.

we love you ~
Your Georgia friends,
Billy, Teena, Michael, Mandi, Dakota, Alyssa, Wyatt & Wesley