Merry Christmas Everyone:}

I just want to take a few minutes wish you all a very Merry Christmas. I hope and pray that you have a blessed day, full of joy and fun family memories. Thank you so much for the prayers for Luke he is doing so much better. It's been a busy week and we are ready for Christmas morning. I hope to be able to sit down soon and share some pictures and more news, but I'm extremely tired tonight and I know my children will be up at the crack of dawn wanting to open some Christmas presents. May God richly bless you and your family!

Love in Christ,
Luke's Mommy Suzi

God has not given me a spirit of fear and I am trying so hard not to live in fear today, but it is challenging to say the least.

I'm trying so hard not to let fear over take me today. I decided to read more about the possible side effects of BOTOX injections into kids with CP last night and today I keep praying for peace. As I mentioned before Luke started getting "junky" almost immediately following his injections, he has been needing to be suctioned a lot more lately and having a hard time clearing his throat. With the fever, higher needs for oxygen and his heart rate all over the place, it's been a few stressful days. I knew that kids had died recently after BOTOX injections, but his Dr. assured me that he was giving Luke a little under the recommended dose for someone his size and weight. I just keep hoping and praying that what ever he is dealing with will all go away soon.

I did take him into the Dr. yesterday and he said his lungs sounded fine and he didn't think that he had pneumonia, I was so relieved to hear this. But today he keeps coughing up thick yellowish, greenish goop and is still struggling so after consulting with the Dr. we decided to start him on an antibiotic. I also talked to the Dr. that did the injections and he thought that what Luke is dealing with is not related to the BOTOX injections, but he couldn't say that for sure. He said that if he continues to struggle and we find out that he does have pneumonia he wants Luke admitted into the Hospital. I told him that Luke has not been admitted in the Hospital for years just because of pneumonia, but he told me that if what he is dealing with is related to the BOTOX then we need to keep a closer eye on him for awhile.

I'm praying as I know many of you are that Luke makes a speedy recovery, as he has so often done, I realize this could happen within minutes to hours and that is what I'm hoping for. God has not given me a spirit of fear, but He has given to me a spirit of love, courage and a sound mind! That is what I'm clinging to today:}

Love in Christ,
Luke's Mommy Suzi

Please keep those prayers coming:}

I'm taking Luke into the Dr. today at 2:20, hoping and praying that he doesn't have pneumonia again, since he's already had it 8 times this year. I was pretty sure he was getting better yesterday, but then last night the fever came back and his oxygen levels began to drop again. Needless to say I was up until 4:30 a.m. responding to alarms and his throwing up again. I am exhausted and overwhelmed I have so much to do still to get ready for Christmas and I can not get motivated. Please keep those prayers coming:}

Love in Christ,
Luke's Mommy Suzi

Luke is sick today, would really appreciate your prayers!

Luke is sick, please pray. Ever since he had his Botox injections he has been very congested. I will update more info later, just asking for prayers today.

Thank you,
Luke's Mommy Suzi

Today is the day we are finally going in for Luke's BOTOX injections, please be praying for all to go well, thank you:}

Luke is getting his first BOTOX injections today, he will get some in his wrists and his quads which is in his thighs. We are hoping and praying that the BOTOX will help his wrists to relax enough so that we can get them to stretch out so that they are not be bent all the time. He will then go in next Wednesday for casting of some new orthodics to help train his wrists to stay straight and hopefully help them to actually move without major pain. Then the goal for his legs is that if we can get his knees to move at all we may go back to the Orthopedic surgeon to talk about options of a minor surgery to clip some of the muscles in his quads to help get us moving his knees again. Please be praying that the BOTOX will work and that we will continue to have wisdom in knowing the correct steps to take in getting Luke bending again.

Tomorrow I will be taking all the kids up to Seattle to see the Nutcracker at McCaw Hall, we are all so excited. Deciding whether to take Luke was a huge decision for me as I knew it could be risky going with him if he wasn't having a good day, but the thought of not taking him as he so enjoys the music was so excruciatingly hard for me that I decided to try it. Please be praying that Luke will have a wonderful day, for that matter that we all will, that he will stay healthy and that we will all stay warm as we are having some frigid weather in WA right now.

So much has been going on lately and I have many pictures to share, I'm hoping to get back on here soon to bring y'all up to date. If you are ever curious to know just exactly how things are going in our lives you could always ask to be my friend on Facebook, just be sure to let me know exactly who you are if you make that request.

Love in Christ,
Luke's Mommy Suzi