We wish you a Merry Christmas!

We would like to wish all of you wonderful people out there following our story a very Merry Christmas. We hope that you had a wonderful day with family and friends. I wish that I had more time in my day to keep you up to date on all that is happening with Luke and the family. First of all thank you for your prayers concerning the healthy delivery of Lily Joy. I always say that delivering a baby is not an easy experience, but this time it was very quick and uncomplicated. God is so good to bless us once again with a healthy baby!

Luke had a wonderful time Christmas Eve and Christmas Day. When he heard Isaiah and Ezekiel talking about opening presents he would get an excited face. He really seemed to tear the paper on the presents. I would hold his hand and put it under the paper and he would release his muscles in his arm and I would help him pull it. The little boys got a small drum set, a desire of Isaiah's for a couple of years now, and I took Lukes hand and had him help play the drums he seemed so excited about that. Someone recently asked if Luke's hand are more relaxed and the answer is, yes. His arms and hands are really a lot more relaxed and when he is sleeping quite often they are down by his side, it never used to be this way. He is also able to hold up his head so much better and when we tell him to put his head back after falling forward he is able to do it. Little by little he gets better everyday, as I say often if you would of seen Luke in the Hospital and you see him now you would be amazed at his recovery, but if you'd never seen him before you would probably feel sorry for Luke and our family, some days his recovery seems to take to so long and other days we rejoice at what we are seeing. We are seeing more emotion and even some smiles quite often, when he held Lily on my lap for the first time I know that we saw a smile on his face.

People often say I don't know how you do all that you do Sue and I have to reply it's only by the grace of God that I'm able to go on some days. I praise the Lord that I'm feeling so well after the delivery of Lily and that I actually am feeling better now that I have her out. Though nights like last night where I'm only able to get a few hours of sleep are very hard I do feel more energetic each day. We are hoping to get our yearly family picture done tomorrow in front of the tree in the living room and hope to get out a Happy New Year Letter and Card out next week. We will post a copy of it on the Blog for all of you faithful followers.

Things to be praying about:
Luke's legs are still very hard to bend and we don't want to work with them to hard because there is always a chance of breaking a bone if we are not careful.
Luke's feedings are still going very slow, most times it takes us up to 45 minutes to get a tablespoon or two of food into his stomach, he continues to stay on the feeding machine in his J-tube to get the bulk of his food, someone asked how his gastronologist appt went and I'm glad to say it went well he had lost one pound which was good considering that we are only able to get in a few tablespoons of food 3 times a day before he start to spit it out.
Once again I continue to ask that he will start to swallow more then he does, it's a mystery why somedays he swallows so much better than others.
Last but not least continue to pray that he will sleep all night, some nights go so well and others are still very difficult.

We continue to thank you in advance for your prayers it's only because of your prayers that we are able to continue on this slow marathon that we continue each day. May God richly bless you and your family.

Love in Christ,
Luke's Mommy Sue