Monday, January 03, 2005

Happy New Year!

We just wanted to wish you all a Happy New Year. We pray that the Lord will bless you all in 2005. We have some great news to share with all of you, Luke began to eat through his mouth last Thursday night. We got a call to schedule another swallow gram on January 18th, so I was thinking that I needed to get him ready and tried to give him some pudding and he swallowed it. I thought that I would than try some applesauce and since then he has been eating daily through the mouth. It is very time consuming to get him to take about 2 tablespoons of baby cereal and applesauce, but it takes about just as long to get him to tolerate a bolis feeding through his G-tube before he begins to spit it out. I was crying and we were all congratulating Luke and he truly seemed so proud of himself.

I also wanted to let you know that Luke is able to express himself more and more each day. It used to be the only way we knew that Luke was upset was to watch his left eye and if it turned red he was hurting or upset about something. Know all we have to do is watch his face, he has definitely let us know if he is upset or happy about something, it so good to see his emotions being expressed once again.

We are getting back into a busy schedule. We are trying to get Luke in for Physical Therapy at least once or twice a week, also a message therapy once a week beginning this Friday. We also are taking him at least twice this week for a HBOT treatment and hope to be able to continue to get him in at least once or twice a week. We have a swallow gram schedule on January 18th and a pulmonologist appt and dietician appt on January 20th. Needless to say we are going to be very busy, but are hoping that these things will continue to keep him progressing. We are hoping at his pulmonologist appt. that we can get him to start Luke on a Passy muir valve for his Trach, which will allow him to breathe into his trach but out through his mouth or nose. Which will allow him to begin to make noises again. The few times he has made a little noise he has looked so pleased with himself.

Please keep Gordy and I in your prayers we haven't been able to get much sleep lately our regular night nurse has been sick and before that she worked a few nights at the Hospital, so we've only had a night nurse for 3 nights since Lily was born. At times we are just extremely exhausted with Luke waking up at night and also with a newborn wanting to eat and not always sleeping at night, needless to say our nights have been very hard at times.

Our prayer for you all this year is that you will learn to Trust in the Lord with all your heart and lean not on your own understanding, in all your ways acknowledge Him and he will direct your path. Proverbs 3:5 & 6

Love in Christ,
Luke's Mommy Sue

13 comments:

Julie in NC said...

Sue, Happy New year to you too! I will write more later! I am so excited to read all the wonderful news about Luke!! Please know that we will take all that you have asked before the Lord. I know that you and Gordy need rest! Blessing to all of you! Shane, Julie and Children

Sean and Karen Price said...

Happy New Year Searles!!!
I am so excited to hear how well Luke is doing so fast!! We love you guys!! Sue just call if you need a nurse FREE OF CHARGE
Karen Price

Lisa Nelson said...

Praise the Lord for the progress!! I have been following your story since the beginning. I love to see Luke's picture when I first log on to your page. It is a joy to be a part of your story and to pray for you. I will continue to pray for your prayer needs.

lockwoods said...

Wow!!! What a great report!!! Praise the Lord for His goodness! It is so exciting to hear that Luke is actually being able to take food into his mouth! I am rejoicing with you! And that he is expressing emotion...Awesome!!! I imagine you all must be just exhausted. We pray for strength for you all. Hopefully you will get your night nurse back and be able to recover a bit.
I know I am always asking questions...I hope you will forgive my ignorance. Here comes another one: Why does Luke need a trach? I know that probably seems like a stupid question...I apologize for my lack of knowledge. Is it because he isn't able to breathe through his nose? I just want to understand better.
We pray for you all each day and are holding you up in prayer...You are loved!
The Lockwoods
(Mark, Amy, Elijah, Tabitha, Joanna, Josiah, and Chloe due Feb 4)

Leon said...

Happy New Year all!

Way to go Luke! Keep on getting better little guy!

Anonymous said...

Hi, Luke!!! My computer is broke and in the shop and so I am checking on our church's computer... to see how you are doing! I am so proud of all you are doing and how the Lord is working mighty in your life and know your whole family is so happy!!! We love you and are praying for you! I will not be able to check for a few days because like I said our computer is broke. You all are so special to us. When I wake up in the night I pray for all of you and for you, Sue & Gordy to get some sleep! I will be praying for the swallow test on the 18th. May God continue to work miracles in all your lives!
your Georgia friends,
Billy, Teena, Michael, Mandi, Dakota, Alyssa, Wyatt & Wesley

Melanee said...

I am so happy for you all and still so empathetic to what you must be going through, I will pray for sleep for you. I haven't checked the blog in quite some time, but my Aunt Kim does keep me informed of his progress. You all have the most faith of anyone I've ever known and you are so right to have it. Luke is a miracle, and I think of him often.
Love to you all from Arkansas,
Melanee Hart

Anonymous said...

Happy New Year!!!!!!! The Good News is so exciting. I will continue to keep you in my prayers. I pray for a peaceful and rest FULL night for you all. Thank you for sharing your praise report with us. W'll mark calendar for prayer on test dates.
Thank you for that Proverbs verse
Trust in the Lord with all your heart and lean not on your own understanding, in all your ways acknowledge Him and he will direct your path. Proverbs 3:5 & 6

Blessings,
The Warren Family
Ronnie,Angie,Kara,Kayla,David,Daniel,Samuel and new blessing due September 2005

Seeking His Will said...

Dear Searles Family,

How wonderful to hear of the improvements in little Luke. Praise our heavenly Father that He is healing your little one. Thank you so much for keeping us updated on how well he is doing!

The Stemann's in Buckley, WA
Mark, Terri, Amy, Noah, Elaena, and little Kiwi

Seeking His Will said...

Dear Searles Family,

How wonderful to hear of the improvements in little Luke. Praise our heavenly Father that He is healing your little one. Thank you so much for keeping us updated on how well he is doing!

The Stemann's in Buckley, WA
Mark, Terri, Amy, Noah, Elaena, and little Kiwi

Jenni said...

Wow, we have been reading your blog and following the story since those first few really scary days that you had with your precious son. To be honest our faith has grown tremendously through your experience and watching your boy grow and change, watching God bring life back to his body, yes slow but sure. It's incredible to think of where he was just weeks ago! We serve and incredible God and He is truly a God who is not intimidated by situations which seem impossible so I guess, why should we be. I love your faith, you bless us all!:) Happy New year and many congratulations on your new little one!

Julie in NC said...

Hello Little Luke, I hope that all is going well in your home. I just wanted you to know that you are in my thoughts and prayers all though out the day. I know that I have not posted much in the past week or two. You are still prayed for so often at our house. We will slow down soon and get back to writing often. We love you and your family so much and still look forward to seeing Gods had move as he restores your little body back to normal. Blessings, Shane, Julie and Children

The Gannaway Family said...

Dear Searles family,
I know that a few months ago you included a postal address where people could send cards etc. but looking through the previous posts I am unable to find that address. Would it be possible to pass a postal address to us as our children would like to send some Australian things to your children. It was wonderful to look through all the previous posts to see how God has worked in Luke's healing. We continue to pray for Luke and praise God for the wonderful healing he has already brought.

Many blessings
The Gannaway Family
Willow Grove, Australia