Monday, January 03, 2005

Happy New Year!

We just wanted to wish you all a Happy New Year. We pray that the Lord will bless you all in 2005. We have some great news to share with all of you, Luke began to eat through his mouth last Thursday night. We got a call to schedule another swallow gram on January 18th, so I was thinking that I needed to get him ready and tried to give him some pudding and he swallowed it. I thought that I would than try some applesauce and since then he has been eating daily through the mouth. It is very time consuming to get him to take about 2 tablespoons of baby cereal and applesauce, but it takes about just as long to get him to tolerate a bolis feeding through his G-tube before he begins to spit it out. I was crying and we were all congratulating Luke and he truly seemed so proud of himself.

I also wanted to let you know that Luke is able to express himself more and more each day. It used to be the only way we knew that Luke was upset was to watch his left eye and if it turned red he was hurting or upset about something. Know all we have to do is watch his face, he has definitely let us know if he is upset or happy about something, it so good to see his emotions being expressed once again.

We are getting back into a busy schedule. We are trying to get Luke in for Physical Therapy at least once or twice a week, also a message therapy once a week beginning this Friday. We also are taking him at least twice this week for a HBOT treatment and hope to be able to continue to get him in at least once or twice a week. We have a swallow gram schedule on January 18th and a pulmonologist appt and dietician appt on January 20th. Needless to say we are going to be very busy, but are hoping that these things will continue to keep him progressing. We are hoping at his pulmonologist appt. that we can get him to start Luke on a Passy muir valve for his Trach, which will allow him to breathe into his trach but out through his mouth or nose. Which will allow him to begin to make noises again. The few times he has made a little noise he has looked so pleased with himself.

Please keep Gordy and I in your prayers we haven't been able to get much sleep lately our regular night nurse has been sick and before that she worked a few nights at the Hospital, so we've only had a night nurse for 3 nights since Lily was born. At times we are just extremely exhausted with Luke waking up at night and also with a newborn wanting to eat and not always sleeping at night, needless to say our nights have been very hard at times.

Our prayer for you all this year is that you will learn to Trust in the Lord with all your heart and lean not on your own understanding, in all your ways acknowledge Him and he will direct your path. Proverbs 3:5 & 6

Love in Christ,
Luke's Mommy Sue

4 comments:

Leon said...

Happy New Year all!

Way to go Luke! Keep on getting better little guy!

Anonymous said...

Hi, Luke!!! My computer is broke and in the shop and so I am checking on our church's computer... to see how you are doing! I am so proud of all you are doing and how the Lord is working mighty in your life and know your whole family is so happy!!! We love you and are praying for you! I will not be able to check for a few days because like I said our computer is broke. You all are so special to us. When I wake up in the night I pray for all of you and for you, Sue & Gordy to get some sleep! I will be praying for the swallow test on the 18th. May God continue to work miracles in all your lives!
your Georgia friends,
Billy, Teena, Michael, Mandi, Dakota, Alyssa, Wyatt & Wesley

Anonymous said...

Happy New Year!!!!!!! The Good News is so exciting. I will continue to keep you in my prayers. I pray for a peaceful and rest FULL night for you all. Thank you for sharing your praise report with us. W'll mark calendar for prayer on test dates.
Thank you for that Proverbs verse
Trust in the Lord with all your heart and lean not on your own understanding, in all your ways acknowledge Him and he will direct your path. Proverbs 3:5 & 6

Blessings,
The Warren Family
Ronnie,Angie,Kara,Kayla,David,Daniel,Samuel and new blessing due September 2005

Jenni said...

Wow, we have been reading your blog and following the story since those first few really scary days that you had with your precious son. To be honest our faith has grown tremendously through your experience and watching your boy grow and change, watching God bring life back to his body, yes slow but sure. It's incredible to think of where he was just weeks ago! We serve and incredible God and He is truly a God who is not intimidated by situations which seem impossible so I guess, why should we be. I love your faith, you bless us all!:) Happy New year and many congratulations on your new little one!