The "Mystery of Luke"

Wow, what a week, it's not quite over but getting close. I did try to blog two nights ago, thinking that if I blog more often they won't be so long, but after writing it out I lost it and it was to late to start over again.

I finally realized something last weekend, I am always talking to those around me about the "mystery of Luke," what you ask is the "mystery of Luke?" It is trying to understand why he sleeps some nights so wonderfully, then the next night is up for two to three hours, why some days he seems to tolerate swallowing a few bites of applesauce and the next day we can barely get him to swallow one bite, why one day he coughs and has to be suctioned constantly and the next he barely has anything there to suction, why some days he seems to take a nap and the next won't sleep a single second, I think you get the idea. I realize this is God's way of getting me to keep my eyes off what Luke is doing or not doing and keep my eyes on the Lord, He is continually reminding me that He is the one that will heal Luke and it doesn't matter what we see or hear from Luke or his Dr.'s, He is in control. I was saying to a friend of mine one day how difficult this is for me, but I know that this is what the Lord truly desires. I have probably shared these verses with you previously, when Luke was still in the PICU someone gave them to us, but I want to share them with you again, I read these verses out loud to Luke and to myself since they are over his bed numerous times a day, Habakkuk 2:2 & 3 And the Lord said to me "Write my answer on a billboard, large and clear, so that anyone can read it at a glance and rush to tell the others. But these things I plan won't happen right away. Slowly, steadily, surely, the time approaches when the vision will be fulfilled. If it seems slow, do not despair, for these things will surely come to pass. Just be patient! They will not be overdue a single day! I know without a shadow of a doubt that the Lord is healing Luke, He is working on it each day and though I wish it was done, I realize that God's timing is perfect and when He is finished we will point to God and God alone as the one who healed Luke. I was reminded today as I received a e-mail from a faithful servant of the Lord who has daily prayed for Luke, she does not know us, but she has prayed everyday for our family and Luke as so many of you have done. Anyway, she said that she is a nurse and she knows that God is the one healing Luke, she has worked with little ones with the same brain damage as Luke and they have never even moved a muscle or came out of their vegetative state. To God be the glory, great things He has done!

Luke has had some good days this week and some hard days. Monday was the busiest day by far, the Dietician said, she was pleased that he had gained a pound, since he had lost one the last time we were there. She wants us to start feeding him more each day through his G-tube which goes straight into his stomach, instead of his J-tube that goes into his lower intestine. Needless, to say this is time consuming and he just is not taking in as much as we would like to see, but once again I have to rest in knowing that the day will come when he will eat normally once again, but in the mean time please pray that he will be able to tolerate more and also that he will truly get a good swallow again, not just letting it go down his throat, but pushing it down with his tongue. At his appointment to get fitted for his new leg splints he was casted, they will be making him a splint that will have a hinge in the knee area so that we will be able to get him to keep his legs bent once again, it will be a slow process, but at least we are doing something toward this goal. On Wednesday when we went to the PT, she was so excited once again at his progress, he is holding his head up so much better and keeping his arms relaxed every once in awhile, which is so great since they used to be almost impossible to straighten out.

Well I said that I would try to keep these blogs shorter, so much for that goal! I hope that you are all having a wonderful week and that you realize we appreciate your support and prayers more than you can ever begin to imagine. One quick side note, I know that I mentioned that we were going to take in Isaiah our 5 year old to the Dr. for his ear, will we found out that he had a perforated ear drum, he is on antibiotics, we are praying that it will be healed when we go back in two weeks. He has had problems off and on with his ears and hearing for a while now and I had planned to get him in for a hearing test on Tuesday, which I had to cancel for now, please be praying that God will heal his ear drum and that he would start to hear better. Also keep Lily in your prayers she seems to be kind of colicky in the evening, this is new for us we've never had a colicky baby before. May God bless you today with an awesome day.

Love in Christ,
Luke's Mommy Sue