Saturday, January 29, 2005

The "Mystery of Luke"

Wow, what a week, it's not quite over but getting close. I did try to blog two nights ago, thinking that if I blog more often they won't be so long, but after writing it out I lost it and it was to late to start over again.

I finally realized something last weekend, I am always talking to those around me about the "mystery of Luke," what you ask is the "mystery of Luke?" It is trying to understand why he sleeps some nights so wonderfully, then the next night is up for two to three hours, why some days he seems to tolerate swallowing a few bites of applesauce and the next day we can barely get him to swallow one bite, why one day he coughs and has to be suctioned constantly and the next he barely has anything there to suction, why some days he seems to take a nap and the next won't sleep a single second, I think you get the idea. I realize this is God's way of getting me to keep my eyes off what Luke is doing or not doing and keep my eyes on the Lord, He is continually reminding me that He is the one that will heal Luke and it doesn't matter what we see or hear from Luke or his Dr.'s, He is in control. I was saying to a friend of mine one day how difficult this is for me, but I know that this is what the Lord truly desires. I have probably shared these verses with you previously, when Luke was still in the PICU someone gave them to us, but I want to share them with you again, I read these verses out loud to Luke and to myself since they are over his bed numerous times a day, Habakkuk 2:2 & 3 And the Lord said to me "Write my answer on a billboard, large and clear, so that anyone can read it at a glance and rush to tell the others. But these things I plan won't happen right away. Slowly, steadily, surely, the time approaches when the vision will be fulfilled. If it seems slow, do not despair, for these things will surely come to pass. Just be patient! They will not be overdue a single day! I know without a shadow of a doubt that the Lord is healing Luke, He is working on it each day and though I wish it was done, I realize that God's timing is perfect and when He is finished we will point to God and God alone as the one who healed Luke. I was reminded today as I received a e-mail from a faithful servant of the Lord who has daily prayed for Luke, she does not know us, but she has prayed everyday for our family and Luke as so many of you have done. Anyway, she said that she is a nurse and she knows that God is the one healing Luke, she has worked with little ones with the same brain damage as Luke and they have never even moved a muscle or came out of their vegetative state. To God be the glory, great things He has done!

Luke has had some good days this week and some hard days. Monday was the busiest day by far, the Dietician said, she was pleased that he had gained a pound, since he had lost one the last time we were there. She wants us to start feeding him more each day through his G-tube which goes straight into his stomach, instead of his J-tube that goes into his lower intestine. Needless, to say this is time consuming and he just is not taking in as much as we would like to see, but once again I have to rest in knowing that the day will come when he will eat normally once again, but in the mean time please pray that he will be able to tolerate more and also that he will truly get a good swallow again, not just letting it go down his throat, but pushing it down with his tongue. At his appointment to get fitted for his new leg splints he was casted, they will be making him a splint that will have a hinge in the knee area so that we will be able to get him to keep his legs bent once again, it will be a slow process, but at least we are doing something toward this goal. On Wednesday when we went to the PT, she was so excited once again at his progress, he is holding his head up so much better and keeping his arms relaxed every once in awhile, which is so great since they used to be almost impossible to straighten out.

Well I said that I would try to keep these blogs shorter, so much for that goal! I hope that you are all having a wonderful week and that you realize we appreciate your support and prayers more than you can ever begin to imagine. One quick side note, I know that I mentioned that we were going to take in Isaiah our 5 year old to the Dr. for his ear, will we found out that he had a perforated ear drum, he is on antibiotics, we are praying that it will be healed when we go back in two weeks. He has had problems off and on with his ears and hearing for a while now and I had planned to get him in for a hearing test on Tuesday, which I had to cancel for now, please be praying that God will heal his ear drum and that he would start to hear better. Also keep Lily in your prayers she seems to be kind of colicky in the evening, this is new for us we've never had a colicky baby before. May God bless you today with an awesome day.

Love in Christ,
Luke's Mommy Sue


Teena said...

Dear Sue & Gordy & family,
I am the first to post a comment! I think that is a first! :) I am so thrilled to see your update. I will pray as I have been but I will pray more specific.
I will also pray for Isaiah's ear... bless his heart. I show your New Year's picture to everyone! "This is Luke's family... see Luke!" I have also enjoyed reading your post to Loni. It is great to know where two or three are gathered in HIS name..... I feel we are connected... I am so thankful for that.
I am praying for sleep for you and Luke. Our Alyssa was colicky and it was hard at times in the evening. Do you use a sling? I didn't have one back then (1997).
I guess I am rambling. Please do not feel your post are too long. I so long to hear and I am so thankful when I see an update.
May God give you His peace today... as you serve Him. Luke, I love you and I am praying for you... Wesley sends you a big hug!!
your GA friends,
Billy,Teena, Michael 19, Mandi 16, Dakota 11, Alyssa 7, Wyatt 3 (next week) and Wesley 18 months

lockwoods said...

Well, I'm glad to see you all made it through your busy week! I thought and prayed for you often! So sorry to hear about Isaiah's eardrum. That really stinks...I have chronic ear infections and they are no fun. We will be praying for little Isaiah's healing. It's terrific that Luke has gained a pound! Yaaay!!! That was a fairly quick gain, wasn't it? Praise the Lord! I really appreciate your posts, and never think they are too long! I confess that I check every day and really look forward to your updates. That is a really neat scripture that you quoted in Habbakuk...I'm going to go read that when I'm done here! And it is just so neat to read your thoughts on the "mystery of Luke"...I think you are really on to something there! I hope that Amy, Natalie, and Daniel had a great time at the retreat, and some refreshing, too. We will also pray for little Lily that the colic will pass quickly and she won't be uncomfortable. You are all in our thoughts and prayers each day!
The Lockwoods (Mark, Amy, Elijah, Tabitha, Joanna, Josiah, and Chloe-due in 5 days!)

Julie in NC said...

Sue, I was so glad to read your updates! You do such a great job. We got back in town last night. Shane and I were in FL last week. You were in my thoughts and prayers. Last monday night I had a dream that you, Natlie and Luke were at my church. I was so excited and came right over to pray and hold Little Luke. His legs were so loose. I woke up and prayed for you in the night.
Sue, I am so sorry that this is such a busy time in your life. I think that you are doing so good! When we had our second daughter she was very fussy. When we ran Vacuum she would stop all crying. I am not kidding...we burned up the moter because we ran it so much. We later found with some of the children the blow dryer did a good job too! Ya never know it may help. We will be praying the the Lord will tell you some of the mystery's of Luke....for you know that he knows. We will keep on asking our Lord to heal and restore Little Luke. Many prayers and much blessings, Shane, Julie and Children

Jasmyn said...

Our "theme" at the retreat this weekend was "God meets us where we're at."
God knows what we need and he delivers it to us in a way that we learn. I know that God is using Luke for many purposes. Almost everyone in our church has learned from Luke and your experiences with him. Many have grown in their faith or seen it stretched in ways that they didn't know possible.
I know God has used this situation to meet people where they're at. And I'm glad that my God is so generous.

Maybe part of the reason for the "mystery of Luke" is God is just meeting him where he's at? :-)

Anonymous said...

Hey Little Mystery Man:
I don't know where I will be on Feb 14th... but
I wanted to say
Happy Valentines Day
I will send you a card too,
so you can put it in your room.
Love, hugs and lots of little
butterfly kisses for you my Little friend
Love Tia Yoli

Jenni said...

Hi Sue, I just had a thought about how you were saying that you pray over Luke that scripture. I think that is awesome! We have a nearly two year old and he doesn't really talk yet but I know he understands. Some days when he is having a hard day and not obeying very well I will hold him and just tell him how much I love him and how much I think he's a good boy and a good helper and it is really amazing how much this changes his attitude, he just needs a love refill. I think it's the same principle with Luke, he cant talk but he understands, if not mentally he understands in his spirit. You keep filling him up with words of life!

Bless you guys! Jenni

Teena said...

Hi, it is just me again... checking in. Just wanted to let you know I am thinking of all of you. I forgot to say in my other post how much I love the scripture that you wrote that you said is over Luke's bed. That is awesome. I am agreeing with Julie... you are doing a great great job, Sue. I know God is giving you the strength and peace you need.... daily. I am so thankful you have allowed all of us to share in this miracle that God is doing. I pray that God will fill you will the wisdom to know just what to do and when to do it!
I am praying for Isaiah's ear too and that it will look great when you go back to the doctor!
May God's grace fill you this night.
Your Georgia friends,
Billy, Teena, Michael, Mandi, Dakota, Alyssa, Wyatt & Wesley

Julie in NC said...

Hello, Little Luke! How are you doing today? I hope you are doing well and your healing is being seen each day by your family. We are still praying for you each day and pray for your family too. How is Daddy doing? I bet he has enjoyed your little sister. Give all of your family a big smile and give your Mommy a kiss tonight right before you go to sleep(smile). Much love and blessings, Shane, Julie and Children

Anonymous said...

I think you're right on track and not many people are willing to admit that they share your views. her lost shoes is an AWESOME place to discuss LOST.

Mr JaguarDriver said...

Well Luke's Mom interesting post. I was looking for Info on how to pray and I came across your site and while The wasn't an exact match i was most interested to read what you had to say. I was looking for how to pray infomation, I glad I came across your site I'll visit again sometime.