Luke is doing fine and is completely off oxygen which is a answer to prayer. We continue to up his feedings during the day time and lower them at night. We have been experimenting with his new "real food" formula. Our biggest challenge is getting it where is the perfect consistency for his drip feeding during the night. We've lost a few hours of sleep over the past week over getting this just right. I've really noticed a change in his coughing and secretions, I really feel that changing him over to real food is going to have a huge impact on him. His PT kept saying on Monday how she thought that his breathing sounded better than ever before and we did not have to deal with any coughing issues. PTL!
I was sharing today with a friend of mine, who happens to be a PT, about Luke perhaps losing some ground this past week or so as far as his head control and his tone issues in his legs. She happened to say that she thinks that perhaps he is still recovering from his recent surgery that she had heard it said that it can take up to 6 months for all the anesethia to come out of his body. Please be praying that this will happen quickly and we will begin to see some awesome changes in Luke's muscle tone and head control.
As I shared last time with you all I have really been dealing with a bit of depression and just plain ole anxiousness about Luke's healing. Gordy and I were just talking about all the decisions and choices we constantly have to deal with, for Luke's health issues. It can be overwhelming at times knowing what steps God wants us to take in helping him to get better. There are so many wonderful supplements we hear about and different therapies that we wish we could do if only money wasn't an issue. When we first began this journey, people would ask us if we need money and we would say no, though we never in a million years would realize how much we would be spending each month on his medical bills, we constantly say that we are so thankful for those that gave even though we did not ask, they took off the financial burden that could of been overwhelming without their assistance. God has always provided for our needs and we continue to trust Him whole heartedly for provision for those things that He wants us to continue doing for Luke. I guess I tell you all of that for one reason and that is for you to really be praying that God will continue to give us His wisdom in knowing what we need to be pursuing towards Luke's journey back to wholeness.
Last but not least I was reading a little devotional book that I get from Peacemakers Ministries on Wednesday the message was Keep Pressing on!, it was saying, You've got to learn how to get alone and give yourself a good talking to! You've got to learn how to pray for yourself and quote God's promises to yourself. Here's one worth quoting: "Weeping may endure for a night, but joy cometh in the morning" (Ps. 30:5) Did you get that? Joy is coming! Help is on the way! You must learn how to rise up and say, "What does not destroy me will only make me stronger. No day lasts forever. This too shall pass. In the meantime I'll let it drive me closer to God." Come on - start talking to yourself! Your weakness can be the discovery point for strengths you never knew you had. It's the biggest battles that produce the biggest victories. When Joseph recalled the worst time of his life he said, "God turned into good what you meant for evil" ( Gen. 50:20 TLB) Others don't control your destiny, God does and He's not like others! You'll come out of this a better person. Look beyond the pain and you'll find perspective. This really ministered to my heart, it was God's way of saying Sue you will get through this and you will find your joy once again, just continue to trust me even when you can't see what I'm doing in your life.
One last prayer request I have for you, is that Gordy and I are going to a Marriage retreat this weekend with some couples from our church. We have been married 22 years this past summer and this is our second couples retreat that we are going on. Amy, Natalie and Daniel will be taking care of the kids, I know that they are fully capable and more than able to do this for us while we are gone. I would just like to ask you to keep us all in your prayers that I will be able to rest knowing that all will be fine with Luke and that he won't have any major health issues while we are gone. Thank you once again in advance for your continued support and prayers, may God richly bless you.
Love in Christ,
Luke's Mommy Sue
5 comments:
Hey Gordy and Sue hope you have one of the best retreats this weekend. Its on the coast right. I remember some of my best times alone with God was done on the rocks near the ocean. Luke will be in the best care, and so you know all will be well at home.
Love you guys so much! Give yourselves and everyone a hug for us!
Love ya, Lori and Lonnie
Hi Sue - I hope you had a wonderful relaxing weekend. :) I've always wanted to go on one of these! SOMETIME! :)
Please write to me privately. I've had to change e-mail programs, and lost your e-mail address. THANK YOU! Loni
lonistel@iserv.net
Our prayers are with you even here in Hawaii, on a tiny rock in the middle of the Pacific ocean.
This song by Bethany Dillon inspires me in times of struggle.
"Hallelujah"
Who can hold the stars
And my weary heart?
Who can see everything?
I've fallen so hard
Sometimes I feel so far
But not beyond your reach
I could climb a mountain
Swim the ocean
Or do anything
But it's when you hold me
That I start unfolding
And all I can say is
Hallelujah, hallelujah
Whatever's in front of me
Help me to sing hallelujah
Hallelujah, hallelujah
Whatever's in front of me
I'll choose to sing hallelujah
The same sun that
Rises over castles
And welcomes the day
Spills over buildings
Into the streets
Where orphans play
And only you can see the good
In broken things
You took my heart of stone
And you made it home
And set this prisoner free
Hallelujah, hallelujah
Whatever's in front of me
Help me to sing hallelujah
Hallelujah, hallelujah
Whatever's in front of me
I'll choose to sing hallelujah
Blessings, Prayers, & Love to you with Aloha from Hawaii...
Jo
Just seeing this too. I hope you had a relaxing time~ encouraging and refreshing for you and Gordy. I have been thinking about you lately. Thank you for visiting my blog. Yes, I guess I am now into the blog world. It is a neat way to keep up with one another and see a glimpe of others hearts. I loved what your devotion said. It is encouraging. As we are a large family also and so many decisions on a daily basis. Michael is at college and Mandi is *thinking* as she is a JR. She feels the Lord leading her into the deaf ministry. That is not something you hear often and so we are really stressing trying to find resources and just what is God's will for her. I can not imagine all that... plus what you are dealing with.. even as you see God's mighty hand in Luke's life. I will pray that God's grace will wash over you and HE will give you the wisdom you need as you seek the best for Luke. YOU both are doing great! Such a wonderful awesome testimony.
we love you~
your GA friends,
Billy, Teena, Michael,Mandi, Dakota, Alyssa, Wyatt & Wesley
Just stopping by to say HI~ thinking about all of you and praying. Hope you had a great time!
our love~
your GA friends~
Billy, Teena, Michael, Mandi, Dakota, Alyssa, Wyatt & Wesley
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