Luke and I are thankful to be back home again

I know many of you are wondering how Luke could end up in the Hospital after I had just posted that he was doing so good after his surgery. Well it was a bad head cold that got his nose so stuffed up that he could not breathe very well, I knew he had a bad runny nose but did not realize how bad it was until we got to the Dr.'s office, on Monday for Luke's post op appt, to make sure his surgery scars were healing okay. When they went to check his oxygen levels, which is something that is pretty standard for him, he was only registering in the mid 80's. I was totally shocked since when I had unhooked him from his oximeter in the morning right before getting him ready for his appt. he was at 94%. They decided that we needed to get an x-ray to make sure it wasn't pneumonia, though I knew it wasn't, then sent us upstairs to his pulmonologist, where I spent the next 4 hours while they gave him breathing treatments and suctioned him until his poor little nose couldn't take much more. I'm thankful that I've gotten to know the RT's at the Hospital, they trust me to know how to best get Luke to cough when he needs a little help. The Dr. then decided that since we couldn't get him lower than 4 liters of oxygen we needed to go check in to the Hospital.

The next day I was "ambushed" by a visit from both Luke's pulmonologist and pediatrician, telling me that this is what I should expect for the rest of Luke's life and that I better get used to many Hospital visits. To say I was upset is putting it mildly. It's so frustrating at times just because Luke can't walk or talk yet, doesn't mean that he hasn't made significant progress this past year. Perhaps the Lord sent Luke back to the Hospital so that I could remind his Dr.'s that I believe that God is healing Luke and I have the faith to believe that though we can not see with our human eyes yet that God is working on Luke from the inside out and one day I truly believe he will be walking and talking and doing all the wonderful things that little boys do.

I'm just thankful that we had many people praying for Luke and we were out of the Hospital the next night. I spent many hours praying and singing praise songs to God during our stay in the Hospital, though it was a very difficult time it was also a sweet time with my Jesus. I told the nurses that I needed to be home since it was going to be Ezekiel's 5th Birthday the next day and he needed his mommy home with him on his Birthday. Since Luke once again far exceeded any expectations of the Dr.'s and nurses and was doing so well, I firmly told them that we were ready to go home, since we have all the equipment at home I knew we would be able to care for him just as good if not better than they could at the Hospital. Luke is doing so much better each day, he only needed to be on very little oxygen today, which is 100% better than the other day. I am continually thanking my sweet Jesus for his strength and though I'm very weary right now, I'm sure that a few good nights of sleep will help immensely.

Please continue to pray that Luke will continue to get better and better each day. I would also like to ask for prayer for myself, I feel selfish doing so at times, but really feel that I need to be encouraged, I'm feeling overwhelmed with all that I need to get done each day now that I don't have our wonderful nurse Mary to help out with Luke's massaging, patterning and special exercises that really need to be done daily. Gordy and I are talking about perhaps hiring someone to help out a few days a week, please pray that God will provide the resources to do so and bring along the perfect person to ask. Thank you in advance for your continued prayers, they are what makes me get through another day.

Love in Christ,

Luke's Mommy Sue