Tuesday, November 07, 2006

We are thanking the Lord, the rain has finally stopped!

The rain has finally stopped, it rained for 4 straight days and made record breaking history here in Washington. I thank the Lord that we don't live in a flood zone, though I did have to take a few detours today and drove through a huge puddle. Luke is finally doing better, he was struggling with a high fever every night for about 4 nights, but during the day it would go away. He is also doing better with his digestion and sounds a bit better when he is breathing. We are amazed that this time during his high temperatures he would not need the high oxygen that he normally needs during his sick times. This is a huge change in Luke and we are praising God for his faithfulness in this area of his life.

Luke continues to make small changes on a daily basis. He is getting so much more alert, he will actually look at a book when we read it to him. I know that Auntie Cindy working with him has been the stimulation that he needs on a daily basis. It seems that at PT he is doing better, his Physical Therapist has commented a few times lately how much better his head control is getting and has made some other positive comments, about his posture and the fact that his arms looking more relaxed. I did finally make a Orthopedic appointment for Luke in December, I'm not really looking forward to that appt. Quite often Dr.'s will either write off kids like Luke or they will want to do all kinds of invasive surgeries and such. I'm not sure if I want either of those things to happen. I continue to give Luke's legs to the Lord, while his hands and arms have gotten so much better, we still have major problems with his legs bending the way they should.

I continue to mess around with his diet. As I've told you in the past we have been making his food for about a year now. It is very time consuming, but I feel worth the fact that it has only good ingredients in it for what Luke needs right now. Often I find myself looking forward to the day that he will be able to once again eat what everyone else is eating. We feed him 3 times a day and then have to complete the rest of his calories at night, which can be very trying at times. We drip it into his feeding tube from a feeding pump and sometimes it will get clogged or he will stretch and move the feeding tube out, which makes for some huge messes. We have to wash his bedding on almost a daily basis. I often say Luke's laundry pile is bigger than 4 other people put together, but I praise the Lord that he has laundry to wash.

We are getting ready to celebrate Amy's Graduation, we have planned a open house for her on November 25th. Amy has been a huge help these past few years with Luke's care, taking over the home duties anytime I have to take Luke to an appointment or he has been in the Hospital. She has gone beyond the call of an awesome daughter, learning how to suction him when he had his trache in, being the only one who we could leave him with during that time with his trache because of the special training needed for his care. Needless to say, she was not able to get all the school work that we require for graduation done in time to graduate last June, then on top of that we left in May for our vacation. I tell my girls and anyone who will listen that I'm so thankful for their servants attitudes and helpful hands, without their help our roller coaster ride with Luke would of been extremely harder these past two years.

Just to update you on the prayer requests from our last blog, Isaiah is doing much better with the rash that he has had for some time now. In fact he decided that tonight was his night to make dinner for the family. He made Nachos with cheese cooked on top, the only big mistake he made was cooking them on a Tupperware plate in toaster oven, thankfully Amy came into the kitchen in time to stop a disaster from happening. I already mentioned that Luke is doing better, but he still needs to get over the congestion that he gets at times through out the day. I need great wisdom on making his food, I tackled that big job today, with the girls help. I'm praying that this batch will be just what he needs to clear up the congestion that he has been experiencing and put some more meat on his skinny bones.

I pray that God will bless you today, just remember: Jeremiah 29:11 For I know the plans I have for you says the Lord. They are plans for good and not for evil, to give you a future and a hope. This scripture was given to us the day after Luke's accident by the Dr. in the PICU, to bring us comfort in our time of need and I continue to find amazing strength in knowing that God is truly in control.

Love in Christ,
Luke's Mommy Sue

4 comments:

Carmichael Family said...

May the Lord bless you abundantly, beyond anything you could ask or imagine. We are praying for you!
Blessings,
Catherine and family

alane said...

I'm so glad to here Luke is doing better. I'll be praying for his orthopedic appointment in December, and for his diet as well. God bless you, and congratulations to Amy!
In Christ,
Alane

Anonymous said...

Praying that everything goes well this weekend!

Love ya guys,
Jasmyn

Anonymous said...

Sue, thanks for the update. I am praying for Luke and all of you. Especially for extra strength for you as you care for him and the rest of the children.

We were surprised and delighted to get Amy graduation card! THANK YOU. She is beautiful.

We are heading to my parents for Thanksgiving.... will be gone almost a week. Michael is bringing his laptop so maybe I can check in.

Did you see the announcement~ on my blog about Amber/Mike?

Lifting you and your family up to the Lord~ you all are so special to us.

our love,
Your GA. friends~
Billy, Teena, Michael, Mandi, Dakota, Alyssa, Wyatt & Wesley