Thursday, June 05, 2008

33 Is My New Favorite Number!

I was sitting in the Dr.'s office counting the times I've been to a medical appointment this week, can you believe it's been 10 times. That's a lot of time! To be fair I have to mention a few of those appointments were for me. Luke did end up having pneumonia as we found out at his appointment with the Pulmonologist on Tuesday. So he is on an Antibiotic and is doing better everyday. Today at his appointment with his Rehab Dr. I think that his Dr. more concerned about his congestion, which I have to admit he did sound terrible, than he was about his muscle tone, which was horrible, but to be expected with him being sick. We decided to up his muscle relaxant to see if that helps him with his tone issues.

Are you wondering why 33 is my new favorite number? It's because that is how much Luke weighed at his Pulmonologist appointment this week. That is one pound more than he has ever weighed in his life. Hearing he weighed in at 33 pounds was one of the sweetest moments of my week.

We had planned to go to a camp up in the Mountains this weekend called Camp Prime Time a camp for special needs children and their families, but wouldn't you know it Gordy came down with the crud last night that Natalie had all last week. I'm praying that his flu won't last as long as Natalie's did. I'm waiting to see what Luke is like in the morning before I make a final decision on what to do. I dreaded telling the boys that we were probably not going to make it because I knew that they would be heart broken as we have been talking about going for weeks. Please pray that somehow we will still be able to go.

On Christ the Solid Rock I stand all other ground is sinking sand,
all other ground is sinking sand!

Love in Christ,
Luke's Mommy Sue


annie said...

Yay for 33!
I pray you get to go to the camp!

Anonymous said...

33 is now my favorite number!

dr_bristow said...

Way to go Luke! I'm so happy to hear he is doing well!

Jodi Pesicka said...

I remember how long it took justine to get from 30 to 40 lbs. literally about 8 years. Very frustrating. I got my pulmonologist to get Justine a respiratory vest called "The Vest" it is an airway clearance vest. She has not had a pneumonia in the last three years since I got the vest. You might look into to it. Justine uses every day twice a day and if she has a cold we use it more often to keep things moving in there. It has worked wonderful. Hope everyone feels better soon. Jodi

Anonymous said...

PTL for 33!! Sue, I am so sorry I haven't been here like I normally am. Just so sorry. I didn't know Luke was sick.... I am lifting all of you up to the Lord... also that God worked a miracle and you were able to go on the camp trip!

I LOVE LOVE LOVE the little video Amy put up of Luke. HOW VERY PRECIOUS. For years some of us have been following, praying and crying out to the Lord for Luke... to watch that video helps me feel closer to Luke and all of you.... to see *alittle* through your eyes. You see I have only known Luke since the accident... but YOU allowed me to see Luke before. I thank you.

I love you, LUKE! YOU are so very special to me.... I am praying for you.... HUGS...

your GA friends,
Teena & family

dr_bristow said...

Just stopping in to say hi and let you know I'm thinking of and praying for you!