Luke's been having some bad seizures lately, so after calling his Neurologist it was decided that we are going to try out a new anti seizure medication called Banzel. We are just waiting for the prescription to be filled as our pharmacy doesn't carry this medication. I will be honest I have put off calling about this problem for awhile, I just don't like what seizure meds do to Luke, but Gordy and I have come to the conclusion that we need to get these seizures under control. I hope and pray that this medication will be the answer to helping Luke stop having these seizures without causing him to lose any attentiveness that we've gained over the years.
At the beginning of the summer I had talked with Luke's rehab Dr. about perhaps splinting his ankles to see if we could help train his feet to go back to there natural place, you see his feet have been pulling up into his legs lately because of his muscle tone issues. I found out from his PT last week that she along with Luke's Dr. and one other PT at the place Luke goes to for Physical Therapy talked without me there about whether this type of casting would benefit Luke. To be honest I wasn't very happy that I wasn't involved in this meeting as I would of loved to give my input being Luke's mom and knowing him better than they do of course. They decided to once again to do nothing for Luke's legs, ankles, feet, etc. which has really upset me because you see they put all kids that have suffered from near drowning accidents into the same catagory, you know the catagory of being hopeless, erk. After our talk last week it was decided we might still try it as it does seem to be one of the few options we have for helping Luke's leg issues. I told his PT that if we continue to do nothing Luke is going to get to the place were we are no longer able to take him our of the house as he won't be able to sit in a car seat anymore because of his legs not bending. That to me is not an option, we have always tried to include Luke into most of our family outings and which is not an easy task but one that we realize is vital to keeping our family together. I will let you know of course what they ultimately decide about the casting issue.
Love in Christ,
Luke's Mommy Sue
PS Please continue to pray for the Mom's coming to the retreat next month, I listed all their names in my last blog post.