I keep praying that once he get's the baclafen pump out his throwing up will stop and his extra oxygen needs will go away. I refuse to live in fear, but can I be honest, this little thought in the back of my head keeps coming up to bite me with these little lies, that nothing is going to get better, oops did I just say that?? Sometimes we become weary in the battle that we are in, have you ever felt that way??
In filling out the pages of paperwork that we needed to fill out to get Luke's waiver process going, which will get him services. I had to go back to past blog posts to remember times that he's either been hospitalized or when he started seeing certain Dr.'s, I could of called Dr.'s offices to get this information, but that would of meant hours of time spent on the phone. All that to say it was a bit discouraging to go back and read previous posts to realize that I'm still asking for pretty much the same prayer requests that I was asking many years ago.
The reality that I've been having rough nights with Luke for so many years was like a slap in the face, I knew this but reading it was overwhelming. I recently heard a statistic that Mom's with children who have special needs have 10 years taken off their lives.To be honest when I first heard that said I began to cry, not just for my life but for so many of my very good friends. If you know me at all you must know that I don't live my life by statistics or what other people think should happen, my life is in the Hands of God and He and only He will chose the day I die, since I believe it when the Bible says that our days are numbered of the Lord. That said, I realize that we need to be wise in how we spend our days here on earth, the bad choices we make may not shorten our lives but it may make those days miserable to live out to the fullest.
|This is what happens when someone is sleep deprived, yes I did go out of the house today wearing two different shoes, oops, have you ever done this before?|
|Yesterday while I was cooking dinner this is how I found Luke, he had fallen off the couch. Thankfully he was fine, though it sure did scare me for a few minutes.|
|I'm thankful that Isaiah was home or don't know how he would of been put back up on the couch, I'm also thankful that though there was a mess to clean up from his feeding tube that his g-tube didn't come out of his stomach.|
Love in Christ,
Luke's Mom Sue