Wednesday, April 24, 2013

Luke's 7th surgery is scheduled today, your prayers would be appreciated

Today will be Luke's 7th surgery and to be honest I'm not looking forward to it!! Don't get me wrong I'm very happy to be getting Luke's baclafan pump out, as it didn't live up to what the expectations were supposed to be, it was supposed to help loosen Luke up so that we could get a bend in his knees, but since it was unable to choose the muscles we wanted it to loosen it chose his respiratory muscles, which has caused havoc with his breathing since we had it put in. The pump has also contributed to making the curve in his spine worse, along with causing some pretty severe constipation and throwing up issues. I keep hoping and praying and  hoping and praying that getting the pump out will cause the major issues we've been dealing with for so long to disappear.
Here's Luke swinging with his PT last week

Luke's surgery was originally scheduled for noon, but I got a call yesterday afternoon telling me that it has been pushed off to 6 pm this evening, which will mean he will probably need to spend at least one night in the hospital. I had been told that it not going to be a overnight stay, but now that it's scheduled so late in the day it's looking like it probably will be that way, though I'm still  hoping we'll be home tonight.

Gordy and I taking off on our weekend away
Gordy and I had a great time at our marriage conference, we are both so glad we were able to attend. We have found the only way to keep our marriage strong, during the extremely stressful days we constantly live with lately, is by putting forth the effort to keep our marriage a top priority in our lives. It was touch and go on whether we'd be able to go because of Luke's health needs and then even while we were gone Luke was struggling, but my sweet Amy girl kept assuring me that she would be able to handle Luke on those really challenging night times. We are so thankful to Yoli and Juan who had generously volunteered to watch Luke along with our other kids Friday night, but Luke ended up going home in the evening because we all felt that perhaps he would have a better night that way. We were also blessed to have Jonathan come help out on Sunday morning and then my sister Cindy watched the kids until we got home Monday night.
Gordy and I visiting Multomah Falls in OR
On Monday we decided to drive up to Mt. St. Helens and we are so glad we did it was a gorgeous day
I called Luke's pediatrician yesterday morning to schedule an appointment to be sure that Luke was healthy enough for surgery today as he'd been having such a rough weekend with needing a lot more oxygen, along with having a fever off and on. It was decided that since Luke has not had a fever since Sunday and that after listening to Luke's lungs, which sounded good, we would proceed with the surgery. I was assured that we were making the right decision to proceed.

Please pray that all will go well with the surgery, for a quick and pain free recovery, for his breathing and other issues to disappear once the pump is taken out. I would also like to ask prayer for myself as I am trying so very hard not to be anxious about this surgery, it is so very difficult each time I see Luke wheeled off to the OR. And last but not least will you keep my other kids in  your prayers it's so hard for them to see their brother have so many challenging and painful things happening in his life.

Thank you for your prayers,
Luke's Mommy Sue

Zeke holding Abigail one last time before they took off to go home last week
I love these pictures of cousins getting to know each other better.
Both Penelope and Abigail laughing at each other, it was so very cute:-)

1 comment:

Tracey said...

How did Luke's surgery go? How is everyone doing?