Luke has a new roommate and needs prayer for healing of the pneumonia the Dr. found in his lungs today

Luke has a new roommate, Lily moved in on Sunday after sharing our room with Gordy and myself for the past 5 months. I’m hoping that it will work out good for the two of them to be together since anytime Luke hears Lily crying he gets upset. Last night Lily woke Luke up and he decided not to go back to sleep for a few hours, so please be praying that this change will be a good one for the two of them and for us also.

I took Luke to the Dr. today, he has been struggling the last few weeks with a fever one day and then it going away for a day or two and then returning again. We’ve also had to put oxygen on him every night lately and his lungs have sounded bad off and on through each day. Well after checking him out he decided to do an x-ray of his lungs to see if he might have pneumonia and it looks like perhaps he does have some fluid in his lower left lobe. We started him on an antibiotic tonight and he is already sleeping better tonight then he has in weeks. Please be praying that the fluid will disappear quickly and that it will not turn in to any complications for Luke.

I was saying to a good friend tonight that I’m tired of this roller coaster ride that I’ve been on with Luke. It has never been fun and it is getting so hard to keep holding on at times. God’s word continues to comfort me in during these hard days. I know that God is able to completely heal Luke and we see daily more and more of his miraculous touch in Luke’s life, just as Job 9:10 says He performs wonders that cannot be fathomed, miracles that cannot be counted. Slowly, steadily, and surely God continues to work in His time, though at times I wish He would hurry it up a bit.

A big praise, Luke seems to be eating better through his mouth all the time and had gained back the pound he had lost last month. He actually took 9 bites at one feeding and then 11 bites at the next one. We are trying new foods all the time and though he doesn’t ever look to be enjoying them he tolerates them. I was told to try CHEESTOS with him since they melt in the mouth and he seems to really think hard about biting down on them with my help, I look forward to the day that I can sit him down at the table with a peanut butter and jelly sandwich and watch it disappear before me eyes.

Well I’m up way too late once again and need to sign off. I hope that you have a blessed day and thank you once again for keeping Luke in your prayers. As a friend had to remind me this week, nothing is too difficult for God.

Love in Christ,
Luke’s Mommy Sue

Things that I'm thankful for!

I know I haven’t blogged in a while. I’ve been a bit discouraged and very tired. I have been thinking once again that I need to think of all the things that I have to be thankful for, there are so many area’s that I’m thankful it’s amazing once I get going. My precious Grandma, who died at the age of 93 in January of 2004 had many favorite scriptures which she lived her life by and the one that I remember her quoting last on her death bed was in Philippians 4:6 & 7 Be anxious for nothing, but in everything by prayer and supplication, with thanksgiving, let your requests be made known to God: and the peace of God, which surpasses all understanding, will guard your hearts and minds through Christ Jesus. The peace of God is something that I find needed in my life, without it I cannot find joy or contentment to go on this long journey I find myself on.

I thought I would make a list of things that I’m thankful for: First of all I’m so thankful for my Heavenly Father who gives me a reason to live, my wonderful husband Gordy which I’m so blessed to have a part of my life the last 22 years, Daniel who keeps our family in his prayers daily, Amy who is willing to lift some of the heavy burden I carry daily, Natalie who goes the extra mile to lighten my load, Isaiah who gives such wonderful hugs, Ezekiel who brings lightheartedness to our home, Luke who continues to amaze us with his healing process, Lily who lives up to her middle name and brings joy into our home. My parents who are always willing to help out around the home with meals, schooling and most importantly lots of continuous prayers going forth. My sister Cindy who comes over almost daily to help with Luke’s care, tutoring the girls in math and teaching Isaiah and Zeke to read and helps watch Lily when needed. Yoli who helps in so many ways, pulling out rose bushes, helping around the house and keeping Isaiah and Zeke when needed. My nurses who continue to lift some of the burden of Luke’s care off of me. Close family members and friends who have taken the financial burden of Luke’s many medical needs off our backs. Tiffany and Jodie, who have faithfully supported me and passed along vital information about Luke’s healing process. Our family, friends and faithful bloggers who continue to lift Luke and our family up to God in their prayers. I know that I’ve probably missed someone important and therefore apologize in advance for doing so and want to say THANK YOU to all of you!!

Once again I’ve made this way too long. Therefore I will close with this challenge to you today, why don’t you make a list of all those that you are thankful for, you’ll be amazed at how good you will fill once you’ve finished it. Thank you for your continued prayers for Luke, he continues to make slow process, please be praying specifically for him to gain some weight, that his excess secretions will go away, that he will not need to be put on oxygen at night, that he will sleep all night and that Gordy and I will begin to get more sleep and feel more rested and encouraged. Thank you once again in advance.

Love in Christ,
Luke’s Mommy Sue

Quick prayer request

Luke is running a fever again of 102+, just like last Sunday morning. Please pray that the fever will go away once and for all. We have been having a good weekend up to now. Sue is out of town at the women's retreat and is having a great time. Luke has been doing well with the girls and I caring for him. I know God answers prayer, and so that is why I am turning to all of you, our faithful followers of this blog. I will update again later this afternoon.

God Answers Prayer!!!

On Saturday night Luke began to run a fever of 102+. Around midnight Sue blogged asking you to pray for Luke and also for Daniel who was going to Scotland on Monday. In the morning we didn’t know what to do, should we take Luke to the doctor or just wait it out. We prayed and asked God for wisdom. After praying we decided to call Luke’s doctor and do what he suggested. We expected that he was going to have us go to the ER. Much to our surprise he did not seem too alarmed and said to keep him home and watch him. After church Sue and the kids went out to eat and I stayed home to care for Luke and try to get him to eat. It seemed like every time I would give him just a little food via his feeding tube, he would spit some up. I was becoming very concerned about Luke not taking his food when Sue and the kids got home from lunch. Sue decided to try and bolis feed him and he took a full feeding. I sat there amazed that he was taking the food, I had struggled to get him to take less then half of a feeding. By early afternoon, Luke’s fever had disappeared and he was looking much better. We believe that this miraculous turn around in such a short time was the result of everyone’s prayers. Thank you for praying.

Also, Daniel and the GTC team left for Scotland on Monday afternoon. They will be ministering in the Glasgow area for the next 2 weeks. Please pray that God will help them to see the people of Scotland as he sees them and that they will show them God's love and mercy.

News and prayer requests for Luke and Big Brother Daniel

I know many of you are wondering how Luke is doing without his trach. He is doing okay. We found out last Friday that he had an infection in the secretions that they took out of his lungs, so they put him on a very strong antibiotic. It seems to be doing the job although tonight Luke is not feeling very well and is having a hard time keeping his oxygen level up and his heart rate is going very high. Please be praying that it is nothing serious and that by morning he will be feeling well again.

I’m sorry for not posting sooner but this week has been crazy. As I told you we thought we had lost our nurses after the trach came out, only to get a call from our insurance agency saying that we could have 24 hours a week to help us transition to no nurses. We are therefore going to take nurses on a few short days a week to help out especially in the morning when it is hard for me to get my act together on some days.

I thought I would share a bit of my heart with you all out there in blog land. Getting Luke’s trach out is such a big deal, but as I was once again reminded today Luke is still very much of a special needs child. It continues to be so hard for me to see him this way, at times it just breaks my heart. I was thinking once again how blessed I am to be spending Mother’s Day with all my children, but at the same time desiring to have my precious Lukie whole again. There are times when I feel so selfish for wishing for more when Luke is doing so well and is recovering so very slowly, but I guess that anyone in my position would desire the same thing.

Please be praying with us as our oldest son Daniel leaves on Monday with his school group to go on a missions trip to Scotland. They will be ministering to the children and youth there, going into the schools and neighborhoods with the good news. He will be gone for two weeks, we will miss him dearly, but our hearts are overjoyed that he is able to be used by God. Also please continue to pray for my schedule as I continue to adjust to our new nursing schedule, that I will be a good steward of the time that the Lord gives to me. As mentioned above please pray for Luke that he will stay healthy and that the infection in his lungs will completely go away and that he will never have to be put on oxygen again. Luke also needs to gain some weight he has only gained two pounds since the accident, we are currently adding some calories to his diet so that he will start to gain some weight, please pray that he will once again tolerate more food into his G-tube during the day and swallow more when we feed him by mouth.

We would like to wish all you Mother’s out there a Happy Mother’s Day and pray that you will be blessed by God and your families today.

Love in Christ,
Luke’s Mommy Sue