Luke has a new roommate, Lily moved in on Sunday after sharing our room with Gordy and myself for the past 5 months. I’m hoping that it will work out good for the two of them to be together since anytime Luke hears Lily crying he gets upset. Last night Lily woke Luke up and he decided not to go back to sleep for a few hours, so please be praying that this change will be a good one for the two of them and for us also.
I took Luke to the Dr. today, he has been struggling the last few weeks with a fever one day and then it going away for a day or two and then returning again. We’ve also had to put oxygen on him every night lately and his lungs have sounded bad off and on through each day. Well after checking him out he decided to do an x-ray of his lungs to see if he might have pneumonia and it looks like perhaps he does have some fluid in his lower left lobe. We started him on an antibiotic tonight and he is already sleeping better tonight then he has in weeks. Please be praying that the fluid will disappear quickly and that it will not turn in to any complications for Luke.
I was saying to a good friend tonight that I’m tired of this roller coaster ride that I’ve been on with Luke. It has never been fun and it is getting so hard to keep holding on at times. God’s word continues to comfort me in during these hard days. I know that God is able to completely heal Luke and we see daily more and more of his miraculous touch in Luke’s life, just as Job 9:10 says He performs wonders that cannot be fathomed, miracles that cannot be counted. Slowly, steadily, and surely God continues to work in His time, though at times I wish He would hurry it up a bit.
A big praise, Luke seems to be eating better through his mouth all the time and had gained back the pound he had lost last month. He actually took 9 bites at one feeding and then 11 bites at the next one. We are trying new foods all the time and though he doesn’t ever look to be enjoying them he tolerates them. I was told to try CHEESTOS with him since they melt in the mouth and he seems to really think hard about biting down on them with my help, I look forward to the day that I can sit him down at the table with a peanut butter and jelly sandwich and watch it disappear before me eyes.
Well I’m up way too late once again and need to sign off. I hope that you have a blessed day and thank you once again for keeping Luke in your prayers. As a friend had to remind me this week, nothing is too difficult for God.
Love in Christ,
Luke’s Mommy Sue
4 comments:
Bless you Sue! Keep holding on and looking forward to what lies ahead. He will never leave you nor forsake you. We will pray for a touch on Luke's lungs. And for sleep! I keep trying to put my two babies in the same room (26 months and 7 months) and I have the same problem, the little one wakes up Aidan. So the little one sleeps in a playpen in the living room, rearranged furniture so he has his own little spot, then he takes naps in Aidan's room during the day in another playpen. Anyway, hope that might give you some ideas :)
Hi, Luke, I know you LOVE Lily and are so happy to have her with you in your room! We are still praying for you, Buddy~ and also for God to continue to restore you completely!
Sue, thank you for sharing your heart with us. Just today I was sharing with a friend about Luke~ she told me that her mom (nurse) is working with a family that has a little boy with a trach. I showed her Luke's picture and told her how Gordy and you always talk about how great the nurses are. I shared with her about Luke~ he is always on our heart and mind.
We feel so very connected and close you all of you! May the Lord bless and keep you and make His face shine on you~
I still think of all of you when I hear the song~ "Blessed be the name of the Lord" Our Michael is going to be playing praise/worship for our NEW contemporary service starting on June 4th~ and the music minister gave him the music and the very first song is "Blessed be the name of the Lord"~ I said "Michael, that's Luke's song" and he said "I know, mom" ~
just sharing to let you know you are craved in our hearts forever~
our love,
your Georgia friends,
Billy, Teena, Michael, Mandi, Dakota, Alyssa, Wyatt & Wesley
{{{hugs to you Sue}}}}
Thanks for your very encouraging note too. :) Loni
Sue,
I found this site through a nurse that my daughter has for her son,18 month old Parker. Parker was born with DORV and was doing quite well,until at the age of 5 months got RSV. When he was taken off the respirator he coded for 10 minutes. The original dianosis was that he wouldn't be able to see,speak or reason and would have a severe case of CP> He also has a trach and feeding tube. That was exactly one year ago while they were living in Hawaii. Today they have been transferred to Ft.Lewis,WA. Little Parker is surprising us all and although he has a long way to go,has fairly good muscle control and can definitely see something.
Your site is so encouraging and your family will certainly be in my thoughts. I live in NE. and have the computer,so I was sharing with my daughter some of the news about Luke.
I'm not sure if what I'm saying/doing is appropriate for this site,but I just wanted you to know how far reaching your story is and how God is using these very special children in all our lives.
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