Saturday, November 06, 2004

This week has been like a Roller Coaster Ride!

Hi all you wonderful people out there in Blog Land,

Wow, what a week we've had! It has been a week of real highs and very lows. As Gordy stated last week Luke came down with a cold and we had a few nights of little or no sleep. But, Praise the Lord last night and the night before were some of the best nights he's had since he's been home from the Hospital, last night he sleep 6 hours.

On Thursday, which happened to be one of the worst days since we've come home from the Hospital, it was also one of the best. Let me explain. We were woke up by a pounding on our door at 3:30 a.m. from our night nurse saying that she needed us. She was having a difficult time getting Luke to sleep and just couldn't keep him suctioned. Needless to say it is one of the worst possible ways to be woken up, in my mind I thought I was getting up to a child that was not breathing. We had to put him back on Oxygen for the first time since the Hospital last week, so this was not so far fetched. I stayed up with him and rocked him and sang to him until about 6:30 a.m. at which time I thought I would go back to bed only to be woke up again by his alarms going off. Needless to say I didn't get hardly any sleep that night, I was hoping to get some more sleep once our nurse showed up at 9:00 but instead I got a call from the nursing agency around 8:00 saying our nurse was sick and would not be able to come that day, they said they would try to find a replacement, but I told them not to try because I knew I could just stay by his side that day. He was sick that day and was throwing up bile until about 3:30. I decided since I was taking in Isaiah to the Dr. take sure his ear infection was gone, that I would take in Luke and boy was I glad I did. The Dr. told me he had a ear infection and a very red throat, he also gave us a bit of wonderful advice about raising up his crib just 2 inches so that he would not spit out the bile anymore and wouldn't you know it worked.

The best part of the day on Thursday was when the girls brought in the mail, I was wonderfully surprised to find a check from someone who is very dear to us for $20,000. I couldn't stop crying, but this time it was from the joy of the Lord. It is interesting to Gordy and I that when you give how much the Lord will bless you. We had recently helped out a friend in need with $200 and wouldn't you know the Lord blessed us with 100 times the amount we had given away. This person said that they were blessed beyond what they needed and they just wanted to see Luke get the best care he could get, so now we have enough money for many HBOT treatments. We just need to know when the best time to start them will be.

This is way to long already, but I want to let you know that the swallow gram did not go very well. They had told us not to put anything in to his mouth yet so we hadn't done that. When we got there Luke was still not feeling well and was very tired and then he was made to sit in a hard chair, he hates to sit up. He kept covering his trach and was stressed and then the lady doing the test put a thick substance like baby cereal in his mouth, he didn't know what to do with it, she also tried to get him to suck a bottle but once again he just wasn't cooperating. I left there very discouraged, she told us to try to start get him to swallow little amounts of liquid and they would perform the test again in 2 or 3 months. Thank you for all your prayers I know that God heard them but it just wasn't his timing to have Luke pass this test.

Thank you again for all your prayers and support, you are all wonderful people.

Love in Christ,
Luke's Mommy Sue

22 comments:

Anonymous said...

Praise God!!! Thanks SO much sharing for about the blessing. It is discouraging that the swallow gram didn't go as well as hoped, but at the same time, the fact that God has blessed you with the money for Luke's treatment is encouraging far beyond just the provisional need. There must be plans!

-kati

Anonymous said...

We had some friends whose sone wrote to our son that some of the cattle would sell. We were perplexed, not knowing they owned any cattle. In connecting with them later, they clarified the scripture that "our Father owns the cattle on a thousand hill" and they were praying a couple would sell for the need they had :) This scripture always so clearly comes to my heart now when praying for a big need like the HBOT. I am streamiing with tears of joy this blessed Sunday morning as I see our Father father has so quickly "sold those cattle" :) to provide for Luke's HBOT treatments. What an awesome, glorious God we serve!!! What an answer to prayer! Thank you Lord as you continue to do mighty things in bringing about the healing of LUke Jeremiah SEarles!! Love in Christ, Mary and the Hurtado gang.

Anonymous said...

Sue, Also such music to my ears that the Lord blessed you all with sleep this weekend. Lord let this be the beginning of a regular night after night sleep pattern with Luke to assist in his healing and comfort and so his beloved mommy can get the sleep she needs. Thank you Lord that you grant sleep to those you love according to your word! Thank you for granting sleep in the SEarles home once again. We claim this in Jesus NAME. Amen. Love again, Mary

Anonymous said...

Sue, Also such music to my ears that the Lord blessed you all with sleep this weekend. Lord let this be the beginning of a regular night after night sleep pattern with Luke to assist in his healing and comfort and so his beloved mommy can get the sleep she needs. Thank you Lord that you grant sleep to those you love according to your word! Thank you for granting sleep in the SEarles home once again. We claim this in Jesus NAME. Amen. Love again, Mary

Anonymous said...

Sue, Also such music to my ears that the Lord blessed you all with sleep this weekend. Lord let this be the beginning of a regular night after night sleep pattern with Luke to assist in his healing and comfort and so his beloved mommy can get the sleep she needs. Thank you Lord that you grant sleep to those you love according to your word! Thank you for granting sleep in the SEarles home once again. We claim this in Jesus NAME. Amen. Love again, Mary

Anonymous said...

Sue, Also such music to my ears that the Lord blessed you all with sleep this weekend. Lord let this be the beginning of a regular night after night sleep pattern with Luke to assist in his healing and comfort and so his beloved mommy can get the sleep she needs. Thank you Lord that you grant sleep to those you love according to your word! Thank you for granting sleep in the SEarles home once again. We claim this in Jesus NAME. Amen. Love again, Mary

Anonymous said...

Sue, Also such music to my ears that the Lord blessed you all with sleep this weekend. Lord let this be the beginning of a regular night after night sleep pattern with Luke to assist in his healing and comfort and so his beloved mommy can get the sleep she needs. Thank you Lord that you grant sleep to those you love according to your word! Thank you for granting sleep in the SEarles home once again. We claim this in Jesus NAME. Amen. Love again, Mary

Anonymous said...

Sue, Also such music to my ears that the Lord blessed you all with sleep this weekend. Lord let this be the beginning of a regular night after night sleep pattern with Luke to assist in his healing and comfort and so his beloved mommy can get the sleep she needs. Thank you Lord that you grant sleep to those you love according to your word! Thank you for granting sleep in the SEarles home once again. We claim this in Jesus NAME. Amen. Love again, Mary

Anonymous said...

Sue, Also such music to my ears that the Lord blessed you all with sleep this weekend. Lord let this be the beginning of a regular night after night sleep pattern with Luke to assist in his healing and comfort and so his beloved mommy can get the sleep she needs. Thank you Lord that you grant sleep to those you love according to your word! Thank you for granting sleep in the SEarles home once again. We claim this in Jesus NAME. Amen. Love again, Mary

Anonymous said...

Praise our ever faithful Lord whose ways are past finding out. What a blessing for the Lord to have provided in such a mighty way. I was thinking, dear Searles, about all that you have given over the years. We too have been the recipients of blessings from your family. God himself does indeed keep track, and brings the abundance when it is needed. Praise Him and bless you. You are ever being lifted before the throne of grace. We eagerly anticipate more mighty acts of God for Luke, and for you. I pray sweet sleep and rest on Luke and you, Sue and Gordy.

Love always,
Barb & the Jacobs clan

Jenni said...

Wow, you guys are blessed! God has purpose for all His provision! We are still believing with you all that God will restore your little boy.

It's amazing to me to see how much you can endure as a mommy Sue. I just had a baby boy a couple weeks ago and I start to think, man when am I ever going to get sleep at night and then I read your blog and it puts it all back into perspective for me. Thanks Sue for being such a great example to all us mommies. You're a great woman of God.

Love, Jenni

if you want to see pictures of our new little blessing you can go to our site. www.chrisandjenni.com

Anonymous said...

Still praying for Luke. Praise God for the blessings.
Here's a site for kids that you might want to check out where you might be able to have Luke featured: www.tumbleweedfoundation.com
Emily

Julie in NC said...

Good day Little Luke, I hope you had a great weekend! We are still asking Jesus to restore your sweet little body. I hope Mommy and Daddy are seeing you try to smile more and more each day. We will be praying for you this week as you have a new tube put in. Sue, I wish I could be there to hold your hand and pray....I will be there in prayer....Be Blessed with a good day. Shane, Julie and Children

Mommy_2 said...

Sue,

We remain in constant prayer for sleep for you and Gordon, for your precious little girl that will be here soon, and most of all, for Luke's healing. Your blog so touched me...it truly has been a roller coaster week for you and I pray that they become few and far between. I know it will be an uphill climb, but I can't wait for you to see the view from the top when Luke is restored to health as I know God will do.

Your blessing made scripture come to mind...
"How precious it is, Lord, to realize that You are thinking about me constantly!" Psalm 139:17 TLB

The Lord knows Luke's and your family's needs, and I know He will meet them all. He is such a loving Father and He cares for the entire Searles family.

With much love and many prayers,
The Tilley Family
Kory, Darla, Brittney & Lane
Rose Hill, KS

Anonymous said...

Hi Luke's family!
This is Cindy again in Yelm.
I wanted you to know I was dreaming of Luke ALL NIGHT LONG! They were wonderful dreams. Surprising things happened.
I continue to pray for him and your family.
Love, Cindymoreno@ywave.com

Anonymous said...

Hi to Luke and family!
I am Vancouver Grandma to Cass and I wanted to thank you for your help in getting the blogsite set up for our family. As you know, this method of communication keeps others in the loop, but also allows for so much warmth and love to flow in to the family. You are a great example of all the goodness that comes from a family that supports one another in love and prayer. I add my prayer to many others for your strength and comfort as you deal with the many layers of life day by day. Reality has changed your lives as it did for ours, but what great blessings have been received! May you continue to feel our Heavenly Father's loving arms of comfort.
Grandma Peg

Teena from GA said...

It is around 3am here and I can not sleep. I started praying for Luke and decided I would check the blog. I am so thrilled that you posted. I cried as I read. My heart goes out to all of you. Sue, thank you for sharing. I am praying about the tube this week.. will it still happen with the ear infection/throat? Please know so many are thinking/praying for all of you. May God continue to give you strength daily and may Luke sleep peacefully.
your GA friends,
Billy, Teena, Michael, Mandi, Dakota, Alyssa, Wyatt & Wesley

Julie in NC said...

Hello Little Luke, How are you doing today? I have been thinking about you and praying for you. Sue, I have been wondering something? Do you guys think that Luke is able to think like before and just can't seem to get it out? I have been thinking that for some reason or another and wonder if that is the case. I know that you guys may not know. Praying that it is a matter of time before he can chat with you all! Blessings, Shane, Julie and Children

Julie in NC said...

Sweet Little Luke, I have been praying for you...I hope that you and your family have had many days with peace and rest. My little boy had a birthday this past week! He in now 2 years old. I bet you and Micaiah would really enjoy playing with each other. We have been praying that your brother's have been sweet to each other and live the way your Mommy and Daddy have been teaching them. Sue, hope you and baby girl are getting rest as well. We have been praying for the rest of your family too. Blessings, Shane, Julie and Children

Anonymous said...

My name is Sarah and I am best friends with Rhiannon (Searles) Bunce, She told me about Luke and I check in daily to see how he is progressing. I just wanted to let you know that my thought and prayers are always with you.

Anonymous said...

Dear Sue, Gordy and family,
We keep praying MUCH for all of you (Grandma and Grandpa included). In our hearts we know that Luke will be restored to wholeness....we are looking "beyond the veil" and praying for the Lord to accomplish His perfect work in all of our hearts while walking thru' this valley.....there is a mountaintop ahead! :-)! We love you all very much. Soooo appreciate our church (Yelm Prairie Christian Center) praying for Luke and your family....God is the rewarder of those that diligently seek Him. May the Lord meet your every need and give you rest and peace as only He can give. Auntie and Uncle

~Misha's Family~ said...

Praise God for his provision!! Those HBOT treatments are going to do wonders for him! Our church is still praying weekly for him and your whole family.

~*~Misha's Family~*~