This week has been like a Roller Coaster Ride!

Hi all you wonderful people out there in Blog Land,

Wow, what a week we've had! It has been a week of real highs and very lows. As Gordy stated last week Luke came down with a cold and we had a few nights of little or no sleep. But, Praise the Lord last night and the night before were some of the best nights he's had since he's been home from the Hospital, last night he sleep 6 hours.

On Thursday, which happened to be one of the worst days since we've come home from the Hospital, it was also one of the best. Let me explain. We were woke up by a pounding on our door at 3:30 a.m. from our night nurse saying that she needed us. She was having a difficult time getting Luke to sleep and just couldn't keep him suctioned. Needless to say it is one of the worst possible ways to be woken up, in my mind I thought I was getting up to a child that was not breathing. We had to put him back on Oxygen for the first time since the Hospital last week, so this was not so far fetched. I stayed up with him and rocked him and sang to him until about 6:30 a.m. at which time I thought I would go back to bed only to be woke up again by his alarms going off. Needless to say I didn't get hardly any sleep that night, I was hoping to get some more sleep once our nurse showed up at 9:00 but instead I got a call from the nursing agency around 8:00 saying our nurse was sick and would not be able to come that day, they said they would try to find a replacement, but I told them not to try because I knew I could just stay by his side that day. He was sick that day and was throwing up bile until about 3:30. I decided since I was taking in Isaiah to the Dr. take sure his ear infection was gone, that I would take in Luke and boy was I glad I did. The Dr. told me he had a ear infection and a very red throat, he also gave us a bit of wonderful advice about raising up his crib just 2 inches so that he would not spit out the bile anymore and wouldn't you know it worked.

The best part of the day on Thursday was when the girls brought in the mail, I was wonderfully surprised to find a check from someone who is very dear to us for $20,000. I couldn't stop crying, but this time it was from the joy of the Lord. It is interesting to Gordy and I that when you give how much the Lord will bless you. We had recently helped out a friend in need with $200 and wouldn't you know the Lord blessed us with 100 times the amount we had given away. This person said that they were blessed beyond what they needed and they just wanted to see Luke get the best care he could get, so now we have enough money for many HBOT treatments. We just need to know when the best time to start them will be.

This is way to long already, but I want to let you know that the swallow gram did not go very well. They had told us not to put anything in to his mouth yet so we hadn't done that. When we got there Luke was still not feeling well and was very tired and then he was made to sit in a hard chair, he hates to sit up. He kept covering his trach and was stressed and then the lady doing the test put a thick substance like baby cereal in his mouth, he didn't know what to do with it, she also tried to get him to suck a bottle but once again he just wasn't cooperating. I left there very discouraged, she told us to try to start get him to swallow little amounts of liquid and they would perform the test again in 2 or 3 months. Thank you for all your prayers I know that God heard them but it just wasn't his timing to have Luke pass this test.

Thank you again for all your prayers and support, you are all wonderful people.

Love in Christ,
Luke's Mommy Sue