Come along with me as I share what its like to spend the night by Luke's bedside. Please pray that he will get better soon.

Here I am it's about 1:45 a.m. I was getting ready to go to bed this evening when I noticed that Luke was struggling with his breathing. He is on 1 liter of oxygen, which is not a huge amount, but I'm getting ready to turn it up to 2 liters if his number don't come up soon. I'm extremely tired after a very busy day. I was up most of the night last night with Zeke, who wasn't feeling too good, then got up early this morning to cook Zeke a special Birthday breakfast of Bacon and French toast. Zeke was feeling better so we all got ready to go to church and we were only 10 minutes late, not bad for our family.

After church I put the casseroles that Natalie and I made last night into the oven to bake, then made up a Ceasar Salad for lunch, we only ended up having 22 for lunch. Zeke had a nice birthday, which I'm very thankful. It was nice to have Amy call us on Skype, even though she is in Denmark she was able to visit with us, face to face and be a part of Zeke Birthday celebration. If you don't have Skype you should check into it, it is a wonderful invention.

I am pleased to say that we finally got Luke and Lily's room put back together last night. My sweet sister Jill came over to help us sort, toss and organize their closet. Natalie went through a basket of papers that were put in the closet 4 years ago right after getting home from Luke's first Hospital stay. It was wonderful to throw away all the massive amounts of information on Trache care, machines that we no longer have and all the old paperwork and discharge papers we no longer need. I hope to put together a scrap book of all the cards and memories from that time in Luke's life to remember all the love and prayers so many poured out on our family during the darkest time in our lives.

"Opps" you'd think I'd know better, instead of just turning up his oxygen tank, I should of been checking to see if it had any oxgen left in it, silly me. After going back to his room for the 6th time in the last few minutes I finally got smart and changed his tank. I'm hoping that will help him and I will finally be on way to bed here in a few minutes. It's a little after 2:00 a.m. and I'm feeling pretty confident that I finally fixed Luke's oxygen problems, I'm off to bed for a quick sleep before all the kids get up in the morning.

I thought I was off to bed, it's 2:30 a.m. and Luke's heart rate is going up so I think he might be coming down with a fever, he sounds horrible and he's struggling to catch a breath, though he's still only needing 1 liter of oxygen. It's nights like these that I have to really depend on God to keep fear from creeping into my heart and the lies spoken into my head, "if he doesn't get better you might have to take him into the Dr. tomorrow" or "who knows if it will turn into pneumonia again and he will end up in the Hospital." I have to rely on that verse in the Bible that says "to take every thought under the obedience of Christ".

Well it's 3:00 a.m. and Luke definitely has a fever, I just checked it and it 102.3, his heart rate now is steady in the 160's, he just threw up and he is up to 2 liters of oxygen. I gave him some Ibuprofen, praying he will keep it down. Here's hoping I will be off to bed soon, but not feeling as optimistic as I was a little while ago. As long as he is alarming I know that it is useless to go to bed since I don't always hear his alarms going off at night anymore.

Now it's 3:40 a.m. and I'm sitting in Luke's room because I'm tired of getting up every few minutes to go back there. His oxygen is doing a bit better, but his heart rate is not coming down, praying that God will reach down right now and touch my precious Lukie.

It's close to 5:00 a.m. and Luke seems to finally being doing a little better. He has not alarmed in about 25 minutes and his heart rate is finally coming down to the 140's. He definitely sounds a little better, not struggling to get every breath, he is on 1/2 liter of oxygen. Praying I can finally get some much needed sleep and of course for Luke to wake up feeling better, nothing is impossible with GOD.

Love in Christ,
Luke's Mommy Suzi

PS Do you have any prayer requests?? I hope you know by now I love praying for all of you out there in blog land, it's exciting to see God answer prayers.