Tuesday, February 02, 2010

Warning: This post is very long, that's what happens when I wait too long to update it. I hope you will find it to be worth your time.

I'm finally going to sit down and bring Luke's blog up to date. Not sure if anyone really follows it anymore, but since this is our journal of Luke's journey, I thought I'd better get it updated. Luke is doing good lately full of lots of smiles and has been healthy, how wonderful it is to write those words:}

In the last post I mentioned that Luke was getting casted for new hand orthodics. That appointment went great and I could tell the two OT's that were working with him were impressed with his range of motion. The casts look great they were both straight, which is amazing for Luke. Luke's OT Eric is being transferred to a different center and we are praying whether we should follow him there as he has been so wonderful working with Luke. I was so excited about our appointment with Matt the Rolfer, he was sure that the Botox had helped Luke and said that his muscles and deep tissue was feeling better than he had ever felt it before.

We also had a follow up with his rehab Dr. after his botox, it was agreed by all that work with Luke that the shots did some good for Luke. We were told that day that his Dr. would talk with the Orthopedic Dr. about surgery to release some of Luke's muscles to help his legs bend, that was two weeks ago and I still have not heard back yet. I'm thinking I need to call to find out what is happening. We are increasing Luke's Baclafen doses to see if that has any effect on his muscle tone issues. There are times that he seem so to be so much more limber and then there are other times that he is still as tight as he could possibly be, it is extremely challenging to know just exactly what will help Luke, it is also comforting to know that God knows.

I've been holding on tight to my promise from God that Luke is going to be healed, but to be honest my fingers have tried to slip a few times lately. I almost gave up hope, which is a terrible place to be, last year was so hard, it seemed at times that Luke would be better off in heaven with Jesus. Have you ever asked yourself how long, oh how long God?? Where is God, why hasn't He heard my cries?? It's been 5 1/2 very long years since Luke's accident, he will be 7 years old next month, that just doesn't seem possible. I found myself asking those questions a lot lately, realizing that when people talked about a Healing God, I would doubt that was true, not a good place to be. As usual I am being totally honest and open with those that might still be following this journey. Gordy recently told someone that Sue has never wavered in her faith that God is going to completely heal Luke and I had to tell him that is not true anymore. There were many times over the past few months that I have wavered, just shows you how human I really am. God's timing is perfect and I have to continue to rest in knowing that God's ways are definitely not always my ways and his timing is not my timing. God is faithful and my faith has been restored, I am once again believing with my whole heart that Luke will be completely healed here on earth, that he will walk and talk again, for I know that NOTHING, absolutely NOTHING is impossible with God.

We have been getting our home ready to put on the market, I realize that this is not a good time to try to sale a home, but with Luke getting bigger and harder to carry around, we have to find somewhere to move where it will be easier to care for his needs. For the last month we have been working like crazy, decluttering rooms, painting, doing a deep cleaning in the garage, putting in new flooring in our bathroom and the list goes on. . . . This Friday we will be walking a Realtor around our home to do an assessment, I'm praying that we will get what we are thinking our home is worth, but with the market so bad right now we just aren't sure of what we will hear. I am confident if it is God's will for us to move that He will sale our home and help us to find the perfect home to move into.

Guess who is taking her husband on a cruise to celebrate his 50th Birthday?? If you guessed me that would be right. Gordy and I are looking forward to and counting the days until we take off on our Mexican Rivera cruise at the end of the month. We are looking forward to just having some rest and relaxation, with a little bit of fun thrown in there. A whole week of no alarms going off at night, no jumping out of bed in the morning to Luke coughing, no waking up to kids wanting to ask you a question, no laundry, no dishes to wash, no cooking, no working, no stresses with medical bills or appointments or medications to give, no . . . . Don't get me wrong I love, absolutely love my children, anyone who knows me knows this to be true, but I honestly believe that best thing that Gordy and I can do for our children is to keep our marriage strong and we need this time to be together, just the two of us. We are blessed to have Amy, along with Natalie and Joshua who will be staying at our home during that week to watch the kids. Will you pray with us that Luke, for that matter all the children will stay healthy before, during and after our cruise? That would make it so much more enjoyable for us.

Well I've done it again, I've made this post way to long, sorry:/ If you are still reading this you a true friend. A little comment to let us know you are still out there would be great.

Love in Christ,
Luke's Mommy Suzi

23 comments:

Darcy Tietjen said...

Sue,
I have been following your blog for a very long time now. I usually never comment, just content to keep up, pray and follow your heart. This time you need to know you are being listened to and that much is received from your writings. Have a blessed time on your cruise.
Darcy-Anacortes

Anonymous said...

I check your blog every day. It is good to hear that several things are making a positive change. Prayers that the cruise and the house preparations will go beautifully.

Anonymous said...

I check your blog every day. It's the first thing I do in the morning when I get to work. Have my coffee and check on Luke. Even when you haven't updated in weeks, I still check every day. So many people are still praying for your family and walking with you on this journey. You are not alone!

Anonymous said...

Still following you, Sue! Praying for a peaceful respite with your dear husband. Someday you will know why the Lord chooses his timing differently than we would, but it can be so difficult in the mean time.
Much love,
Carolyn, for the Youngs

annie said...

Hi friend... You can only understand this journey if you are in the path yourself... I'm so glad you are back on track and I'm standing with you beliving God for complete restoration.

Today has been a difficult day in our journey. I'm trying to decide between a nap, retail therapy or a big cry session :).

Yay for the cruise!!!

Nicintime said...

Always praying. And we follow the blog all the time, and check it almost daily. The more you post, the more we check it, BTW... :-) The more you write the more we read. If you don't write for awhile there's nothing to read!! It never gets old, and we are standing with you, and we trust God completely - no matter what. Grace and strength to you!

Anonymous said...

Always praying with you, Sue.
It's Gareth's 50th Birthday today, and I wish we could join you! HAPPY BIRTHDAY to Gordy, enjoy your trip and God's blessing on your time together!
Sue Floyd

Rachel E. said...

I definitely still follow your blog, Searles family! I consider it a privilege to be a part of Luke's journey and to pray for him as often as I can, and especially when you post new prayer requests here and on Facebook. I'm so excited that the two of you get to go on that cruise and pray that it will be an awesome time of relaxation and recharging.

Anonymous said...

Of course we still read :-) Even though we know most of what's happening, it's nice to get the specifics about Luke to pray for his comfort and progress now, as we continue to pray and believe for his complete healing - we serve a God of miracles! How exciting for you and Gordy to get away for a whole week - I'll be praying that all stays well at home :-)

Much love,
Jeri

Anonymous said...

HI Sue,
I'm still checking in! Thank you for your honesty and transparency about wavering faith in Luke's healing. I can only imagine what these last 5 1/2 years have been like for you. Prayers for Luke's health and the sale of your home are going up right now. Blessings and more blessings to you.
Stevanie Sweet

kelly said...

The Lord has and will continue to walk with you on this journey with Luke. Whatever the reason for His timing and for Luke's eartlhy healing to be or not...it is all in His plan and it will be for good.

I love to read your updates and check in often. My prayers for you and your family and precious Luke will continue. Great plan to sneak off with our husband. You deserve it! Relish every moment!

Michelle said...

I've been watching your blog too. I'm glad you posted. I know what you mean about wavering. I've always asked
God to at least allow Emily to talk. Occasionally I hear a word, but that isn't want I want. I want a whole conversation. Emily has been in a lot of pain lately and I want her to tell me what hurts. I also have been asking "How long O Lord?"
I'm glad you will get to go on vacation. And I'll remember your family in prayer.
Michelle

Anonymous said...

Sue,
We still are following and praying. God is good! Enjoy your time away with your husband. Praying for everyone's health and for refreshing.
Laurie for the Burkharts

Anonymous said...

Sue, It's time for Mama to write. Mostly to tell you what an encouragement you are to Dad & I. You, Gordy too ...and the whole family have been such an example of endurance (overcoming). It isn't that we never doubt or fear, these minds constantly need to be brought into subjection to the Spirit. But as God is the protector of the heart as we are His children, we are safe in Him. NEVER run from the battle when you know God is on your side (and you settled that a long time ago when you surrendered your life to Him).I like to think of the Lord cheering us on to the finish line. We truly are in a race as we read in the Word. Believe Mom & Dad as we are now old that it is worth it all and surely will be at that beholding of Him soon. He is the rewarder and may I say,, THE reward. Thank you Sue for all you are, a true 'Mother in Israel'.We are behind you in love and prayers with joy. Mom and Dad

Anonymous said...

Sue,
Yes, we still follow your blog. So glad to hear all the praises- that Luke has been doing great lately and that God has restored your faith and hope. How exciting that you and Gordy are going on a cruise together! Blessings to you my sister. With much love and prayers! Mary

Sigrun said...

Your faith encourages me. I hope to meet Luke one day - maybe he'll become a traveller and head to Oz :)

Kate said...

It's ALWAYS worth my time to read your updates. You and precious, precious Luke have held a special place in my heart ever since the day I heard of the accident. We have prayed for you and loved you even though we have never met. I remember one night when things weren't looking good at all, and I was praying so hard and just started sobbing so hard I couldn't even finish making dinner. I know it seems like he has so far to go, but LOOK HOW FAR your amazing, beautiful boy has come!!

Have a wonderful time on your cruise. OF COURSE you love your children - no one who reads this blog could ever imagine otherwise - but you need a break. I applaud your wisdom in putting such a high value on your marriage - good for you!!!!!

Blessings,
Kate
www.homeschoolblogger.com/ourquiverfull

Teena said...

Here... always here reading. I check every few days from my blackberry... for some reason it doesn't let me comment! UGH...

but I am reading... I am here.. from the beginning of this journey. YOU are doing great. God is still on His throne... even when we do not understand.... I know you know this... I am sorta reminding myself too.

I love you, friend.... I am praying. Give LUKE a big hug from ME...

love,
Teena

Anonymous said...
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Anonymous said...

Hi Sue,
I have written a couple of times, but I check your blog daily. I am so glad you and Gordy are getting away for a bit. Sometimes it is just what we need to recharge. On the 7th day, God rested. This vacation is your 7th day.

Continuing to pray for you and your family!
Janeen

dr_bristow said...

Dear Sue,
This verse came to mind as I was praying for you and Luke as I read your update:
Galatians 6:9
Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up.
Praying for perseverence and grace for you this week!
Alane

戴佩妮Penny said...
This comment has been removed by a blog administrator.
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