Warning: This post is very long, that's what happens when I wait too long to update it. I hope you will find it to be worth your time.

I'm finally going to sit down and bring Luke's blog up to date. Not sure if anyone really follows it anymore, but since this is our journal of Luke's journey, I thought I'd better get it updated. Luke is doing good lately full of lots of smiles and has been healthy, how wonderful it is to write those words:}

In the last post I mentioned that Luke was getting casted for new hand orthodics. That appointment went great and I could tell the two OT's that were working with him were impressed with his range of motion. The casts look great they were both straight, which is amazing for Luke. Luke's OT Eric is being transferred to a different center and we are praying whether we should follow him there as he has been so wonderful working with Luke. I was so excited about our appointment with Matt the Rolfer, he was sure that the Botox had helped Luke and said that his muscles and deep tissue was feeling better than he had ever felt it before.

We also had a follow up with his rehab Dr. after his botox, it was agreed by all that work with Luke that the shots did some good for Luke. We were told that day that his Dr. would talk with the Orthopedic Dr. about surgery to release some of Luke's muscles to help his legs bend, that was two weeks ago and I still have not heard back yet. I'm thinking I need to call to find out what is happening. We are increasing Luke's Baclafen doses to see if that has any effect on his muscle tone issues. There are times that he seem so to be so much more limber and then there are other times that he is still as tight as he could possibly be, it is extremely challenging to know just exactly what will help Luke, it is also comforting to know that God knows.

I've been holding on tight to my promise from God that Luke is going to be healed, but to be honest my fingers have tried to slip a few times lately. I almost gave up hope, which is a terrible place to be, last year was so hard, it seemed at times that Luke would be better off in heaven with Jesus. Have you ever asked yourself how long, oh how long God?? Where is God, why hasn't He heard my cries?? It's been 5 1/2 very long years since Luke's accident, he will be 7 years old next month, that just doesn't seem possible. I found myself asking those questions a lot lately, realizing that when people talked about a Healing God, I would doubt that was true, not a good place to be. As usual I am being totally honest and open with those that might still be following this journey. Gordy recently told someone that Sue has never wavered in her faith that God is going to completely heal Luke and I had to tell him that is not true anymore. There were many times over the past few months that I have wavered, just shows you how human I really am. God's timing is perfect and I have to continue to rest in knowing that God's ways are definitely not always my ways and his timing is not my timing. God is faithful and my faith has been restored, I am once again believing with my whole heart that Luke will be completely healed here on earth, that he will walk and talk again, for I know that NOTHING, absolutely NOTHING is impossible with God.

We have been getting our home ready to put on the market, I realize that this is not a good time to try to sale a home, but with Luke getting bigger and harder to carry around, we have to find somewhere to move where it will be easier to care for his needs. For the last month we have been working like crazy, decluttering rooms, painting, doing a deep cleaning in the garage, putting in new flooring in our bathroom and the list goes on. . . . This Friday we will be walking a Realtor around our home to do an assessment, I'm praying that we will get what we are thinking our home is worth, but with the market so bad right now we just aren't sure of what we will hear. I am confident if it is God's will for us to move that He will sale our home and help us to find the perfect home to move into.

Guess who is taking her husband on a cruise to celebrate his 50th Birthday?? If you guessed me that would be right. Gordy and I are looking forward to and counting the days until we take off on our Mexican Rivera cruise at the end of the month. We are looking forward to just having some rest and relaxation, with a little bit of fun thrown in there. A whole week of no alarms going off at night, no jumping out of bed in the morning to Luke coughing, no waking up to kids wanting to ask you a question, no laundry, no dishes to wash, no cooking, no working, no stresses with medical bills or appointments or medications to give, no . . . . Don't get me wrong I love, absolutely love my children, anyone who knows me knows this to be true, but I honestly believe that best thing that Gordy and I can do for our children is to keep our marriage strong and we need this time to be together, just the two of us. We are blessed to have Amy, along with Natalie and Joshua who will be staying at our home during that week to watch the kids. Will you pray with us that Luke, for that matter all the children will stay healthy before, during and after our cruise? That would make it so much more enjoyable for us.

Well I've done it again, I've made this post way to long, sorry:/ If you are still reading this you a true friend. A little comment to let us know you are still out there would be great.

Love in Christ,
Luke's Mommy Suzi