I so wish I could say that he continued to do great but no, can't say that at all. It seemed like everytime they would turn up the medication in his pump he would not respond good at all, to the point that he would throw up for a couple of days and require lots of extra oxygen. So needless to say we've had to have his pump turned down twice now and I'm not sure if that's helping either. I took him into his Pediatrician last Monday because I thought perhaps he was dealing with some kind of sickness because of his need for constant oxygen and the throwing up he was doing. But after x-rays it was decided that he did not have pneumonia, but then took him into his Physiatrist last Wednesday, who is the Dr. in charge of his pump medication and he thought he did hear crackles in his lungs so we started him on his first antibiotic since March, since then we have not seen much improvement, erk. Which brings us to earlier today when I decided to take him into his Pediatrician again, he thought his problem are related to the baclafen pump so he sent us to get it turned down again. After sleeping most of the day, he decided that he didn't want to sleep tonight, so it's either been gagging on way too much secretions, constant suctioning or alarming from his oxygen dropping way too low. Another sleepless night for me.
Now onto some good news. Daniel and Sarah welcomed Penelope Grace into their family on July 30th, both baby and mom are doing really good:-) She's so precious and we are feeling so incredibly blessed.
|Gordy and I visiting one of our favorite beaches on the Oregon Coast Oswald West Beach|
I have been telling the boys all summer long that they could have a campout in our back yard, so last week squeezed in between Amy's bridal shower on Saturday, Penelopes birth on Monday, Luke being sick with Dr. appointments, buying and then making the food for my neices wedding on Saturday, we had a overnighter with 10 boys sleeping in tents in the back yard. They all had a great time and got along wonderfully. Yep, I did it again way overscheduled myself this past week.
|Some of the boys playing a card game during their backyard overnighter|
|The Toilet Paper wedding dress contest at Amy's bridal shower|
|Janell and John's wedding ceremony, they were married by Janell's dad John|
|Josh, Natalie and Abigail, such a sweet looking family:-)|
|Janell and Lily right before she walked down the aisle.|
|The boys all dressed up and waiting for the ceremony to begin.|
|My sisters Lori, Jill, myself and Cindy|
|Love this picture of my girls:-)|
Love in Christ,
Luke's Mommy Sue