Luke continues to get better, though I don't think he is at 100% yet. He is still on a bit of oxygen each night. Tonight has been a challenge to say the least, it is 2:45 am and I think that I've finally got him settled for the night, for awhile he was alarming every few minutes. I find that sometimes all I need to do is rearrange him and his numbers will go back up, other times I need to turn up the oxygen for a little while to get him to where he needs to be.
I took Luke into see his Pediatrician last week and he decided that we should take Luke to his Pulmonologist so that we could get his opinion on just what Luke needs right now, whether that's taking out his tonsils or other suggestions. The Pulmonologist did say that Luke's tonsils were larger than the last time we were there and suggested that he does a sleep study to see exactly what is going on at night. Luke was not doing so well the day I took him in, his numbers were in the low 90's I thought he should be on some oxygen, but his Doc, didn't seem too concerned. I left there kind of frustrated thinking that if it was a "normal" child they would be trying to figure out what to do get the oxygen numbers up to where they should be, but since it's just Luke why worry. That's not what was said, that's just how I felt. I personally don't like to see Luke's number anywhere below 95, I'm more comfortable with them in the upper 90's of course.
I got a call from the place where Luke will be doing his sleep study, we've scheduled it for March 19th, which happens to be my sister's birthday. We will need to be there from 7:30 p.m. until about 7 a.m. He can have one person stay with him, so of course it will be me. I'm kind of curious to see what will be the outcome of his study.
In other news, we got our family picture done last Saturday. I'm pretty pleased with the way it turned out. I promise to show it to you all soon. Natalie is still on jury duty, she will hopefully finish up her case tomorrow. Amy was sick a few days last week, but is on the mend, I'm praying no one else catches it. I'm absolutely positively exhausted, I've gotten into a pattern of not being able to go to sleep at night, some nights it's Luke's fault, other nights it's mine. I guess all the stress of Luke being so sick has been almost too much at times, I know that I need to turn to Jesus and am doing my best, but I would still sure appreciate your prayers.
Love in Chirst,
Luke's Mommy Suzi
4 comments:
Dear Sue, praying for Luke's oxygen numbers to stay up consistently, for continued health for your whole family, and for rest for you!
Love, Alane
Matthew 11:28-30 "Come to me, all you who are weary and burdened, and I will give you rest. Take my yoke upon you and learn from me, for I am gentle and humble in heart, and you will find rest for your souls. For my yoke is easy and my burden is light."
He sounds like he is doing better. Justine has had 3 sleep studies and they all came back inconclusive as to what the reason she was having some apnea spells. At one point before the trach we would use a chin strap that a respiratory therapist gave us. We also had to do all the repositioning. After 18 years of doing this I know what you mean about sleep patterns, mine is so messed up. It seems like my body wants to sleep in 3- 4 hour shifts. I have put her in my room to keep from having to go across the house very time she alarmed. Luckily we had a huge sitting are that all her stuff fit in. Well hope you figure out something soon for you and his sake. Jodi
Praying for you guys!
Sue, stopping by and saw the update. Praying that tonight is a great night.. that you get a good nights sleep and are refreshed and renewed in the morning. Praying for Luke. Praying for the sleep test.
Looking forward to seeing the family pic!
blessings,
Teena
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