It's Hot, Hot, Really Hot Here!

We as with the rest of America are trying to survive a heat wave that has hit our area. This week temperatures will be in the high 90's all week long. Last night when I got home around 8:30 the house was 90 degrees, after getting all the fans going it cooled down to 86. Luke does not do well with the heat his oxygen levels go way down, he had to be on a liter of oxygen for some time before he finally cooled down and then we were to turn down his oxygen for the rest of the night.

I took Isaiah along with 7 other kids to our church kids camp yesterday, which is in Sequim about a 2 hour drive away. Since it was out near Pt. Townsend, where Matt the Rolfer lives I took Luke along. Matt was very impressed with how good Luke is doing, he said his muscles and deep tissues are feeling really good, he asked me what we are doing different? I really did not have an answer, except to say we've had lots of people praying that Luke would start to bend and his muscle tone would get better.

I took Luke in for a follow up x-ray yesterday morning and recieved the news from the Dr. that his lungs are looking much better, therefore we can go ahead with his Baclafen pump trial tomorrow. I have to check Luke into the Hospital tomorrow morning at 7:00 a.m. for the procedure to begin. He will have to be put out while they inject the a high dosage of baclafen into his back. They will check his range of motion before they begin, then again after 2 hours, then one more time 2 hours later, then we are released barring no complications hopefully around 1 p.m. If this trial show a lot of improvement in Luke's muscle tone and allows him to bend his legs, we will then set up a date to have the surgery to put in a pump that will deliver baclafen into his system all day long. The nice thing about the pump is the fact that it will by-pass his brain, therefore not causing him to be sleepy most of the day. I know the pump has really been a huge blessing for many children, I also know that for some it has not been good at all. We really need God's wisdom to know what is best for Luke, will you join us in prayer so that we will really hear God's voice in this matter??

As mentioned in my last post we went camping last week, then celebrated Daniel, Josh who is Natalie's fiance and Sarah, Daniel's girlfriend birthday's. Here are some pictures from their party hope you enjoy.

Love in Christ,
Luke's Mommy Suzi