Monday, March 09, 2009

EEG results, Neurologist and ENT appointments this week Luke has it all!

Today is a beautiful snowy day, though I hope the snow stops soon, Luke has lots of appointments today and I don't like driving in the snow. We begin the day this morning going to the Neurologist, he will share the results from the EEG Luke had last week. The EEG Tech said she didn't see any seizure activity, but not to get our hopes up they had to study the test because Luke has unusual brain activity. Duh, he suffered a brain injury!

Then this afternoon, if the snow stops I will take him to Port Orchard for a HBOT dive. After that at 4:00 we see his new ENT Dr. at which time he will probably be recommending a tonsillectomy and adenoid removal for Luke. Luke has been doing so awesome this last week, I'm having doubts whether I want to put him through that surgery. We need God's great wisdom in the matter!

We celebrated Luke's 6th Birthday on Sunday afternoon, his actual birthday is on Tuesday the 1oth this week. He really seemed to enjoy the activity and seemed to look at his cake and presents this year. He seems so much more alert this past week and so very smiley and happy or just the opposite, he's found his complaining voice again and let's us know when he is not happy. This year has been a hard birthday for me, I don't know what it is about him turning 6, except for the realization that he is not really getting better as fast as I had hoped for, crying for me has been a daily sometime hourly happening in my life lately. There you go keeping it real again, I'm praying that God will renew my joy and hope this week! Don't get me wrong I'm clinging onto hope with my fingertips, but I want to get to the place again this week when I'm strong enough through Christ's strength to hold onto that hope with my entire being, that might not make sense to many of you, but just know that I'm desperate for your prayers.

One last praise note, Isaiah is finally doing better, his cough is almost completely gone, Lily is doing better and Natalie is almost totally better, except for the nagging headache she's had a for a few weeks, please pray it will go away today for good. Thank you for your prayers!

Love in Christ,
Luke's Mommy Suzi


Rachel E. said...

Happy, Happy Birthday, Luke! What great news that everyone in your family is starting to feel better. Praying for continued healing for everyone and an extra dose of joy for Mommy.

Anonymous said...

Happy Birthday Luke!!! I think of you often Sue... pray for you too.

Praying for the appts. praying that God gives you EXTRA grace this week. Asking Him to renew & refresh you.

That is what it is all about being REAL. We can all act like everything is fine, or perfect but LIFE is not that way...

HUGS to all....

Cindy said...

Hi Sue!
I had that surgery when I was 6 and I am the only one in my family who has not had strep throat. Or many sore throats at all. Personally I think it would be a good thing for him to have it. From what I hear it is really easy these days, they use lasers instead of a scalpel.

Sigrun said...

I pray your tears be healing tears for Luke's recovery

dr_bristow said...

Praying this verse for you, dear Sue:
"I will turn their mourning into gladness; I will give them comfort and joy instead of sorrow." - Jeremiah 31:13