Wednesday, March 04, 2009

Luke Has Appointments, Appointments and More Appointments!

Lukie man has lots and lots of appointments this week and next! On Tuesday he had OT, which he is doing so well lately picking up and putting down his hand on a switch to make a toy or music go. He was working so hard on Tuesday he would actually make loud noises to get his hand to go where he wanted it to, his OT was very pleased with his progress. We left there and went straight to the HBOT center, by the time we got home we were both exhausted.

I've spent lots of time on the phone the past few days. Luke's Pulmonologist has called on numerous occasions letting us know that he is working on getting Luke into the Neurologist and ENT. Luke is scheduled to go into see the Neurologist next Monday morning at 10 a.m., but they wanted him to have an EEG before that day so he is scheduled to go in tomorrow afternoon for his EEG. I plan to take him to the HBOT center before going to the EEG, I'm praying that we will not see any seizure activity. I'm hoping that the seizures that were seen during his sleep study were caused by a lack of oxygen.

I've been talking to Luke's primary Doctor, trying to get Luke into see a new ENT, which is just getting set up at Mary Bridge in Tacoma, he will be the only ENT Pediatric Specialist in the area. There are plenty to go see in Seattle, but I would rather not go up there if I don't have to. Needless to say he is not a preferred provider yet, therefore we would have to pay out of network charges, so I've been trying to get that small detail taken care of, which is a challenge since he doesn't officially have a clinic office yet. Therefore we are seeing him in Luke's Pulmonologist office, next Monday afternoon. Another day spent at Mary Bridge, will the fun ever end???

Will you be praying that Luke's brain will settle down and begin to do some serious healing soon? I know that seizures aren't always a bad thing, they could mean that his brain is trying to make new connections. We need so much wisdom in really knowing what road to take for Luke's best healing possible. Also whether getting Luke's tonsils and adenoids out are what is best for Luke, I don't want to make that decision hastily, I've already been told by two Dr.'s that the surgery could be very dangerous for Luke. I need to be sure not live by fear, but faith, that's easier said than done some days, but I truly am trying and I know God's see's my heart.

One last prayer request is for our family to get and stay healthy. At least one to two people have been sick since January 15th. Amy, Natalie, Isaiah and Lily have all been sick this week. Lily and Isaiah are on antibiotics for ear infections, they both have a terrible cough, though Lily is doing a little better today. If Isaiah is not better tomorrow when he wakes up I'm going to try to get him back into the Doc again, he's been coughing so bad he can't really eat without going into a coughing fit. I can't help but wonder why so many are sick??? I just know that I'm sick and tired of sick and tired children, I mean that I'm ready for healthy children again. I know that many are going through trying times right now, I don't want life to be all about our family, if you need prayer please let us know so that we can lift you all up to God. We've been diligently keeping Sadie Belle, Baby Mia, Hayden, Valerie Grace, Jaynee Lockwood, Dennis, Noah and so many others in our prayers already, but we know that God is HUGE and is able to do more than we could ever imagine.

Love in Christ,
Luke's Mommy Suzi