I don't think I ever reported back to you what we found out from his EEG. When I took him into the Neurologist he told me that he saw seizure activity that corresponded with Luke's video taken at the same time. He told me that Luke would go into high tone and look to the right each time and that was a seizure. I told him for years now Luke's right hand is extremely sensitive and if you touch it without telling him or even if he touches his hand on something he will go right into the high tone looking to the right pattern. But if you tell him you are going to touch his hand he will not go into that pattern. The Dr. told me that this was the first time he has ever seen anything like what Luke is doing. I could tell he was stumped, in fact he asked me if it was ok to share this with some of the other Dr. in the office to see what they thought, I said that it would be ok. Needless to say he wanted to put Luke on Keppra, which is a seizure med, but I've heard about Keppra and it has bad side effects, so I told the Dr. that Gordy and I would talk about what we wanted to do. We have decided to wait until Luke gets his tonsils out to see if that helps with the seizures, since we think they are partially related to his oxygen deprivation problems.
We have scheduled Luke to get his tonsils out on April 11th, not the date I would of chosen since it is the Saturday before Easter, but it is the first available date the Dr. has. Therefore we will most likely be in the Hospital on Easter again this year. Though we will see if it actually happens, I'm pretty sure he will need to be healthy to do this surgery, they just postponed his Botox injections, which should of happened today because they didn't want to sedate him while he is not healthy. So much going on, so many appointments, so many Doctors, I'm hoping and praying that as soon as he get's his tonsils and adenoids out he will get healthy again and stay that way for a very long time.
So many people need prayer right now, I almost feel bad asking y'all to pray, but I know that we serve a HUGE GOD who can handle all our prayer requests. Here are some urgent prayer requests: Sadie Belle, Baby Mia and Samuel Lockwood, they all need prayer for more information please check out their blog sites, they are listed in Luke's Prayer links.
Love in Christ,
Luke's Mommy Suzi